Tumblr, the quirky, controversial, notoriously unprofitable social media platform, may finally disappear. Verizon’s decision to clear the site of adult content has gone over badly with users, in part because Tumblr has always housed significant amounts of adult content, in part because haphazard enforcement of the new rule has affected SFW blogs. A significant number of users have already decided to leave. It is possible, though by no means certain, that Tumblr could survive without people who use Tumblr as a source of adult content, but many believe the departure of fandoms is a fatal blow to the social network…
There are unique joys to gathering with other Autistic people in a setting that isn’t run by neurotypicals and isn’t designed with change, improvement, or growth in mind. Autistic children, youth, and adults who have only ever encountered other Autistic people in support groups, social skills training, or similar settings are missing out on friendship, a greater sense of self-determination, knowledge of community norms, and an opportunity to divorce the idea of gaining real, functional social skills from that of trying to be indistinguishable from neurotypicals. …
Finding the Autistic community is an experience like no other, especially for adults who grew up unaware of autism or unaware of people like themselves in organized groups. The strong emotions of homecoming, belonging or nervousness about finding a place to belong, pride in a new identity, and joy of a camaraderie perhaps never before known can be intoxicating. The number of people to meet and amount of information to absorb seem infinite, impossible. It’s as overwhelming as it would be to stumble through a mountain pass on a hike and find a lost homeland in the hidden valley below.
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Please take the time to learn something about disability in 2018. There is no reason to think 2018 will be any less challenging for the disability community in the U.S. than 2017 was. The things that made 2017 so difficult are largely unchanged. For that reason, it’s important to consider how to protect the interests of people with disabilities when problems arise in the new year. One small step almost anyone can take is becoming more informed in 2018.
It seems paradoxical to say that pan-disability advocacy efforts have the best track record of furthering disability rights and disability justice…
It is difficult to keep up with even major developments in American politics and policy today. It can be easy to lose sight of apparently small changes. One essential thing to keep up with in the coming days and weeks is the likely demise of net neutrality. This is a grave threat to the kind of Autistic community most of us consider worth having. The possible short-term impact on the best sites catering to us could be extremely damaging. The long-term implications, while more insidious and harder to predict, may be far worse. …
The Caribbean suffered terribly, but Florida escaped the worst of Hurricane Irma. Still, vulnerable people there weren’t safe. Nine nursing home residents in Hollywood Hills, Florida succumbed to the heat when their facility lost power. These extremely vulnerable people with disabilities lost whatever time was left to them, whatever living there might have been. It seems likely that there will be punishment or compensation, but it’s impossible to return what was lost. The most tragic part of the whole situation may be that the dead weren’t killed by the storm through flooding, wind, or the collapse of a building. They…
Some of the most painful situations new activists get into revolve around stories. What seems like the chance to do good can end in embarrassment Even if the portrayal, the content or media that comes out of sharing a story, is ultimately respectful, third parties may still project their own prejudices on it. Personal stories told in dignified ways can be used in undignified ways. There is also the storytelling trap: it can feel more useful than it actually is. …
We have an extremism problem. If you hadn’t noticed or weren’t convinced, the act of domestic terrorism perpetrated by a white supremacist on peaceful protesters last weekend should have fixed that. The damage is done, but we may be able to prevent more. Former President Obama’s widely-retweeted statement that no one is born a bigot is right. Bigotry is learned. We know, because we’ve watched it happen, that plenty of radicalization connected to the Alt-Right and other awful groups has happened online. If you control any part of the internet, big or small, it’s your job to help stop that.
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Autistic people widely agree that we’re better-equipped to solve our problems than anyone else. Given a say in what science gets funded and what the organizations with the biggest budgets do, we believe, we could tackle many of the most serious problems facing our community. We demand our place in establishing the disability policy agenda, insisting that primarily parent-run organizations should not make every decision about which issues take priority. Unfortunately, our behavior doesn’t always match this stated position. …
Tonight, people will gather around the world to mourn persons with disabilities killed by their caregivers. Some have loved ones who also remember and miss them. Many were kept so isolated by those who would eventually murder them that they were largely strangers to the world. Their memories are little more than names we read at vigils because they were ours, though we did not know them, and maybe an old school picture online. It’s good that we remember them. We wouldn’t be people, much less a people, if we didn’t remember our dead. …
Lawyer. Internet dweller. Tuba player. Opinions are mine. Please don’t blame other people for them. http://autisticfuture.com