A Critical Moment for Medical Innovation

An open letter to Congress from former Senate Majority Leader Bill Frist, M.D., former Representative Bart Gordon, patient, health care provider, research, and biomedical organizations: Now is the time to advance medical innovation legislation

We congratulate the Senate Health, Education, Labor, and Pensions Committee for passing a series of bills to advance medical innovation. This builds on the House of Representatives’ passage of the 21st Century Cures Act and the president’s call for a “National Cancer Moonshot.”

The moment is ripe for bipartisan collaboration to enact medical innovation legislation this year, bringing new, safe and effective treatments and cures to Americans.

As you know, the pace of medical innovation is astonishing. Emerging therapies offer promise of cures for life-threatening diseases such as Alzheimer’s, cancer, Parkinson’s, and others. We are on the cusp of more personalized medicine that takes into account a patient’s unique genetic, environmental, and lifestyle factors. We must ensure research and regulatory institutions can keep pace.

Pending legislation would streamline getting safe and effective treatments, devices, and cures to patients, and bolster the FDA and NIH to effectively carry out their roles in this charge. We urge Congress to continue bipartisan negotiations and we remain optimistic an agreement can be reached that can garner broad support.

We strongly encourage Congress to act now. The opportunity to enact meaningful, bipartisan legislation this year is within reach. Millions of sick patients and the medical community are counting on it.


Abigail Alliance for Better Access to Developmental Drugs


African American Network Against Alzheimer’s

Allergy & Asthma Network

Alliance for the Adoption of Innovations in Medicine (Aimed Alliance)

Alzheimer’s Foundation of America

American Association for Physician Leadership

American Behcet’s Disease Association

American Congress of Obstetricians and Gynecologists

American Partnership for Eosinophilic Disorders

American Society of Nephrology

American Telemedicine Association

Arthritis Foundation


Banner Health

Beyond Celiac

Cardio-Facio-Cutaneous International

Cardiovascular Research Foundation

Caregiver Action Network

Celiac Disease Foundation

Central Florida Behavioral Health Network


Choroideremia Research Foundation, Inc.


Cleveland Clinic Foundation

CME Coalition

Coalition for Imaging and Bioengineering Research

Coalition for Clinical Trials Awareness

Colon Cancer Alliance

COPD Foundation

Cure HHT

EveryLife Foundation for Rare Diseases

Dysautonomia International

Fight Colorectal Cancer

Friends of Cancer Research

Foundation for Sarcoidosis Research

Genetic Alliance

H.E.A.L.S of the South

Infectious Diseases Society of America

Intel Corporation

International Essential Tremor Foundation

ICAN, International Cancer Advocacy Network


International Foundation for Autoimmune Arthritis

Leukemia and Lymphoma Society

Lung Cancer Alliance

Lupus and Allied Diseases Association​

Lupus LA

Lung Transplant Foundation

Lupus Foundation of America


M-CM Network

March of Dimes Foundation

Men’s Health Network

Myasthenia Gravis Foundation of America

National Alliance on Mental Illness

National Alopecia Areata Foundation

National Down Syndrome Society

National Fragile X Foundation

National Health Council

National Lymphedema Network

National MPS Society

National Multiple Sclerosis Society

National Osteoporosis Foundation

Noah’s Hope

Oncology Nursing Society

Parkinson’s Action Network

Rally Foundation for Childhood Cancer Research

Preeclampsia Foundation


Rare Disease United Foundation


The LAM Foundation

Veterans Health Council of Vietnam Veterans of America