Great writeup of a very not enviable situation, and I really hope the doctors can pin this down for you.
A comment you should not listen to, because I’m a retired guy who used to design computers and such, trained as an electrical/computer engineer and certainly not as a doctor. Oh, and have dealt for the last 2 decades with some residual effects of a sick house on myself, wife, and two now adult children.
Your nervous system is malfunctioning, in strange ways that come and go. When this happens in a computer or other electronic circuit, it’s not because of a logic error and typically not because a component has just plain failed. It’s typically noise, either on a power supply, or in some signal.
One thing you could do, while your doctors look for the things they do know about and can find/name, is to simply keep two separate logs, one of every change in your environment (what you eat, what you breathe, what laundry detergent etc is in your bedding and nightclothes) — these are looking for noise in any form that could affect your nervous system — and a second log which is how you’re functioning. Then later, see if there is any correlation at all between any of the environmental variables and your ability to function. (Any time scale from immediate to 48–72 hours on the delay between exposure and ability to function could be a useful correlation.) Probably won’t be, and if there is the doctors could see the journaling as OCD or your observation as invalid (particularly if what you observe simply can’t occur given the basic theory underlying the practice of mainstream medicine today). But if everyone’s stumped, it’s worth a try.
