I Was Just Born This Way and Lived
You don’t adjust to being you…you just live your life and grow and change along the way.
I am so sad that you feel that you have to struggle to see the positives in your son’s life or be sad believing he is ‘getting used’ to things that he ‘shouldn’t have to. Your son has seizures, he has loving support and access to medical care. He is coping well (no doubt with excellent support from you) with the limits that epilepsy puts on his life. That is a GIANT positive! By you feeling that he’s only getting used to a life without things then you are turning it into a negative and projecting negativity into his life. Life with epilepsy just means our life is different than yours. Not sadder, not less opportunities, not less fun or happy..just not exactly the same. But what child’s life is exactly like their parents? Your son’s life is perfectly normal. It is perfectly normal for a person who happens to have seizures.
I have lived with epilepsy for 47 years (since birth) and done so without the caring treatment, medications and concern that your son is receiving. Mine was ridiculed and punished as bad behavior and I was expected to ‘change’. If there is something a child shouldn’t get used to THAT is it. Not the love and concern of a parent and the treatment of a doctor. I continued to try and change my behavior, hide the seizures and even seek therapy to be a better person up until 10 years ago when I landed in a neurosurgeon’s office nearly suicidal. I began treatment for my epilepsy. Today I’m blessed when I have a seizure free day but it is the best I can hope for after so many years gone by untreated. I do not feel that my life is less or in any way limited even though at this point I am 100% disabled. My life is just different. I am blessed in many ways. I have developed a strong sense of humor, deep compassion, sympathy and empathy and immense person strength. I have been blessed with the most wonderful and loving husband and my life is full. I in no way feel that I ‘had to get used to’ living any certain way. I was just born this way and lived.