Please stop saying stuff like this to parents of “special” kids

Who you calling “special?”

I have a son with Down syndrome, and I have a confession to make:

The kindness of strangers really, really annoys me sometimes.

Don’t get me wrong; I’ve heard horror stories from parents who’ve endured intolerance, rudeness, even downright cruelty directed at their children, and I’m very grateful that I haven’t had to deal with that so far. What I have encountered, more times than I can count, are well-meaning strangers who stare at Cooper with sympathetic eyes, then turn to me and say things like:

“My neighbor has a little Down’s boy. They’re such angels, aren’t they?”

“People with special needs are special gifts from God.”

“I LOVE children with Down syndrome. They’re like gentle lambs.”

Of course, I’ll smile and nod and thank them. But it takes all my will to keep my eyes from rolling and my mouth from spitting out exactly what I’m thinking. Which is usually something like this:

“Angel?!? Ha! Hellraiser would be more like it.”

“Aren’t we all ‘special gifts from God’ if you believe that sort of thing?”

“My son is not a gentle lamb. He is a fucking warrior. You should see him body slam his big brother during a crib match.”

I know these people have good intentions. But their words remind me of a very painful reality: for the rest of his life, many of the people Cooper meets will size him up in an instant, filing him neatly under the “special” label and not bothering to look much further. Which is a big loss for both sides.

Raising a kid like Cooper means walking an eternal tightrope. I want to believe he’s just like any other kid. Except that he’s not. I say he doesn’t have “special needs.” But let’s face it, my older son didn’t require occupational, physical and speech therapy from the moment he was six weeks old. I don’t want Down syndrome to define him. Except that it does, in so many ways. And why should that be a bad thing?

I just want people to understand that there are so many other things that make Cooper special besides being, well, “special.” He can pick up a breakdancing routine in seconds. He loves learning new tricks to make people laugh. His favorite book is “Dinosaur Roar,” and he knows just when to roar, squeak and curl his hands into little claws when we’re reading it. He plays the bongos ferociously, ending every song by throwing his hands up in the air with a dramatic flourish. He worships his big brother, adores his Daddy, but reserves his biggest hugs, kisses and cuddles for Mommy (that’s me!) And like all two-year-olds, he can be a real jerk sometimes.

In other words, Cooper has his own personality, with his own unique strengths, weaknesses and flaws, just like the rest of us. So, well-intentioned strangers, please stop making assumptions about the kind of person he is based on all the other people you know with Down syndrome. It’s inaccurate and lazy to reduce this entire population to one mild-mannered, happy-go-lucky, halo-wearing mass. And if you go this route, you could be missing out on getting to know some really great (or not-so-great) people.

So the next time you meet a special child, or an adult for that matter, try this. Treat them like anyone else. Get to know them. Engage. Learn a little bit about them before forming your conclusion about what kind of person they are. You might be surprised at what you find.

I wasn’t kidding about the breakdancing.

Thanks for reading!

If you liked this post, please take a second to click the green heart and recommend it. Every heart means a lot. You can learn more about my ongoing quest at Operation Goosebumps or Facebook. Feel free to contact me directly at diane@operationgoosebumps.com.

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