RareNeuroJuly — Disability Awareness (not Pride) MonthI’m not proud of my disabilities, they suck!Jul 3Jul 3
RareNeuroUncomfortably Numb — the possible complications of anaesthesia and HSP/PLSIs anaesthesia a problem for someone with HSP [Hereditary Spastic Paraplegia]? This was a question I needed an answer to when I was told…May 18, 20191May 18, 20191
RareNeuroOn Rare Disease Day — when you hear hoofbeats, it’s definitely zebras!That sounds bizarre, so let me explain. In the medical world a ‘zebra’ is medical slang for a ‘rare, unusual, or surprising disease or…Feb 27, 2019Feb 27, 2019