RareNeuro – Medium

RareNeuro

RareNeuro

July — Disability Awareness (not Pride) Month

I’m not proud of my disabilities, they suck!

Jul 3

July — Disability Awareness (not Pride) Month

Jul 3

RareNeuro

Listen up!

We need to talk about hearing loss.

May 29

Image of a single ear poked through a hole in paper

May 29

RareNeuro

UK Disability History Month

Did you blink and miss it?

Dec 17, 2023

Dec 17, 2023

RareNeuro

I totally understand that feeling.

Oct 12, 2023

Oct 12, 2023

RareNeuro

Great article, and thank you for highlighting Rare Disease.

Oct 11, 2023

Oct 11, 2023

RareNeuro

I have Complex HSP and yes, it can be scary!

Oct 10, 2023

Oct 10, 2023

RareNeuro

Drowning in my Diagnoses…part two

Three not-so-little words

Oct 10, 2023

Drowning in my Diagnoses…part two

Oct 10, 2023

RareNeuro

Uncomfortably Numb — the possible complications of anaesthesia and HSP/PLS

Is anaesthesia a problem for someone with HSP [Hereditary Spastic Paraplegia]? This was a question I needed an answer to when I was told…

May 18, 2019

Uncomfortably Numb — the possible complications of anaesthesia and HSP/PLS

May 18, 2019

RareNeuro

Drowning in my diagnoses…part one

An ill-fitting box

Apr 1, 2019

Drowning in my diagnoses…part one

Apr 1, 2019

RareNeuro

On Rare Disease Day — when you hear hoofbeats, it’s definitely zebras!

That sounds bizarre, so let me explain. In the medical world a ‘zebra’ is medical slang for a ‘rare, unusual, or surprising disease or…

Feb 27, 2019

On Rare Disease Day — when you hear hoofbeats, it’s definitely zebras!

Feb 27, 2019

RareNeuro

RareNeuro

Writer | researcher | owner of a rare disease (or two) | advocate for Rare Disease - 'individually rare, collectively common'

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