Proud mother, PhD student, Karolinska Institutet. Selfcare expert fighting #Parkinson. #QuantifiedSelf #epatient
A few days ago I had some disappointing news. I have been working on my PhD in the area…
I’m sure most of you have seen me write once or twice before that PD is a very complex disease, but it bears repeating:
PD is a very complex disease!
I owe a lot to research. Thanks to an immense number of dedicated researchers, I have access to reasonably effective treatments for my Parkinson with (so far) manageable side effects. And of course we need more research, in all diseases and on all levels of…
THE BURDEN OF TRACKING
I have called myself a self-tracker since the first time I heard the word. The concept of using technology to collect data about myself and then analysing that data to better understand different aspects of myself and my surroundings has always resonated strongly with me, both as an engineer and as a…