Why people feel those with chronic conditions don’t deserve a decent income

Picture: male in dark jeans and t-shirt sitting on BMX bicycle on ramp, looking in the distance

Sarah in Wonderland (who talked on the site before about crowdfunding her wheelchair) has written an excellent post on her site about the impending budget cuts for people with disabilities in the U.K. .

I think this is an absolute outrage. If anything, those of us on disability benefits need more money, not less.

I hear the ‘but you don’t work’ argument time and time again and let me tell you, it’s absolute bullshit!

Our health-related expenses are so much higher than any other person. With no remote chance of increasing our income or reducing our outgoings.

If you’d like a personal example, I’m in Europe and my costs for food and basic meds is €150 more than my disability benefits.

“If you’d like a personal example, I’m in Europe and my costs for food and basic meds is €150 more than my disability benefits.”

That doesn’t even include Florinef, weekly IV meds, the home nurse who administers the IV through my port catheter or doctor’s costs.

That’s about $200 or £100 I’d be in the red if it wasn’t for my mother’s income.

If we’re being honest, I think it boils down to how people with chronic illnesses are perceived in our society.

We’re constantly undervalued as human beings because simply by existing we challenge people’s perceptions of themselves and their lives.

If anything, this is why I do what I do, because we do need people who can help us (help ourselves ;) ) who know what we’re all about and to chance that bullshit perception.

As a health coach, I know there is not a single healthy (for real, healthy) person in our Western society today who doesn’t make a conscious effort to be healthy.

Keeping that in mind, it’s only natural for people with regular health to be confronted with their health issues when facing us.

While I have the option of building my own health coaching business, most people don’t have this luxury.

I don’t even know if my health is going to allow me to get this business of the ground, let alone be able to keep running it long term. I very much hope so, to get myself out of those red figures and to help my fellow spoonies.

I implore everyone to think about the way they feel about those of us with chronic conditions and just how much of a dignified live we’re allowed to live.


Sarah is a certified health coach and trained pastry chef. She was diagnosed with gastroparesis almost 6 years ago. Since then she was diagnosed with gluten intolerance and dysautonomia. Her step by step systems help other spoonies combine going gluten-free with their other dietary restrictions, apply systems to use their spoons well and get support.

Originally published at sarahfrison.com.

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