by Rochelle Gold & Shirley Sarker
Each year, over 10 million people in England are screened as part of the national screening programmes, saving thousands of lives through early diagnosis and preventive treatment.
Some of these screening services are running on technology built in the 1980s. For example, the cervical screening programme is run on the National Health Application and Infrastructure Services (NHAIS), which is an ageing distributed system consisting of more than 80 data hubs covering different geographic areas of England. Users must spend months learning hundreds of different codes in order to perform laborious data management tasks.
The nature of how NHAIS was built prevents us from adding efficiencies. For example, we are unable to integrate new data streams or design new services for participants to manage their own data. …
I’ve been road cycling for a few years now. I started cycling to stay fit but now spend my free time training for races and iconic climbs in Europe. To maintain my fitness during dreaded UK winters, I’ve always given my soul away to my indoor cycling trainer or what cyclists call the “pain cave”.
My first indoor trainer consisted of a magnetic resistance wheel that I latched on the back of my bike wheel and followed pre-programmed intervals onto my GPS computer. …
To find out, I spoke with Ramon Sangüesa (@ramonsang) from the Data Transparency Lab, an inter-institutional collaboration between MIT, Mozilla, Inria and Telefonica raising awareness on data privacy through research, science and design.
We discuss topics such as: why we should all care about privacy, what designer can do in all this and the world of government data privacy. In the following week I came across a design company based in London that is starting the discussion from a design perspective.
Studio If have started the design discussion of privacy and have created an open source bank of design patterns to navigate users through the complicated world of data consent. If you are in the London area, they will be making the dialogue public with new meetups scheduled in the next few weeks. …