Black Lives Matter Plaza, Washington, DC, June 9, 2020, by Ted Eytan on Flickr

Sonja Sharp, an LA Times reporter, interviewed Deaf people about how they are creating and sharing new signs for this moment of reckoning and recognition. Watch the story’s video (below) featuring Rorri Burton, a Black American Sign Language (ASL) interpreter:

The sign for “your knee on my neck” is…

Years ago, I met a mom of a child with a rare disease who matter-of-factly shared her story, which included as many twists and close calls as any blockbuster summer movie. I marveled at her heroism and she said no, she rejects that description. “I’m not a hero,” she insisted…

Source: brad on Flickr

by Susannah Fox, Jane Sarasohn-Kahn, and Lisa Suennen

I’ve lived long enough to have learned
The closer you get to the fire the more you get burned
But that won’t happen to us
Cause it’s always been a matter of trust

  • A Matter of Trust, by Billy Joel

If you’re in health care and don’t live under a…

The Cajun Navy — people who rally their personal boats to rescue hurricane survivors — is an example of how ordinary citizens are the true first responders in a disaster zone. …

Image by Matteo Papagna on Flickr

There has been a steady drip-drip-drip of articles documenting how health apps are sharing data with third parties:

  1. Data sharing practices of medicines related apps and the mobile ecosystem: traffic, content, and network analysis, by Grundy et al. (British Medical Journal, Feb. 25, 2019)
  2. You Give Apps Sensitive Personal Information…

“Sorting” by mkreul on Flickr

How do you define “health data”? To borrow a phrase from Daniel Solove, it is a concept in disarray and in need of a taxonomy.

Here are the items that fall naturally into the health data basket:

  • electronic health record data
  • current or past health and disability status, including mental…

“Go tell it on the mountain” — a jacket for Marianne Vennitti by Regina Holliday

What do you do when you know something is wrong but you can’t find anyone to confirm your suspicions? Or when you finally identify the culprit but find out that other people are being kept in the dark? …

Regina Holliday’s 73cents mural in Washington, DC. Photo credit: Ted Eytan

I have found that we can anticipate the future by paying attention to artists. Like hackers, artists bend tools until they break and ask, “Why CAN’T I do that?” They push the edges of any field they find themselves in.

Autodesk, which makes software for people who make things, created…

Blue Button is a Trojan horse for culture change in the American health care system. It places power in the hands of patients and whets the data appetites of millions of Americans and the companies who would like to serve them.

If you’ve never heard of Blue Button, here’s…

Photo by Meghan Fox

Six years ago, the last time I had the opportunity to measure it, a Pew Research survey found that about two in ten U.S. adults have gone online to find people who might have health concerns similar to theirs.

Now, in a report we published on July 31, a…

Susannah Fox

I help people navigate health and technology.

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