Rose ActonAn update from Rose’s familyWe are heartbroken to share that Rose passed away on the morning of Wednesday 2nd December 2020. She was calm, peaceful and comfy and with…Dec 12, 2020Dec 12, 2020
Rose ActonFighting Bobby & Co: Three new pals…When I wrote my ‘one year on’ blog back in August, I introduced Bobby’s friend, Dobby — a tumour progression in my optic chiasm that was…Sep 15, 20203Sep 15, 20203
Rose ActonFighting Bobby and Dobby: Fertility and Lynch SyndromeOriginally posted on Parla.Aug 18, 2020Aug 18, 2020
Rose ActonFighting Bobby and Dobby: One year onOn this day — exactly one year ago — I posted about my brain tumour diagnosis, introducing Bobby to the world. After an initial six week…Aug 7, 2020Aug 7, 2020
Rose ActonFighting Bobby: reflections on lockdownIt’s been almost a year since I was diagnosed with a brain tumour — an inoperable grade 4 glioblastoma, also known as Bobby. It was a…Jun 21, 20201Jun 21, 20201
Rose ActonFighting Bobby: is ‘fighting’ the right word?‘Fighting’ is the term that I’ve been using to describe my experience following an incurable brain tumour diagnosis last July. To recount…Apr 22, 2020Apr 22, 2020
Rose ActonFighting Bobby: Three months into chemoSo I’m three months in, and with three chemo cycles down it seemed like the right time for some reflection.Feb 12, 2020Feb 12, 2020
Rose ActonFighting Bobby: first phase of treatmentIt’s been a little while since I last blogged — here are some numbers to give you an idea of what I’ve been up to during my first phase of…Nov 10, 2019Nov 10, 2019
Rose ActonFighting Bobby: a dramatic first week of treatmentSo, I started chemotherapy and radiotherapy last Monday. It was all going swimmingly — I didn’t feel nauseous or sick or really have any…Aug 26, 20191Aug 26, 20191
Rose ActonFighting Bobby: preparing for treatmentOne week after diagnosis, and I’m writing this from Croatia — I think it’s fair to say that a holiday is just what the Doctor ordered…Aug 15, 20191Aug 15, 20191