SYNGAP1 FoundationMoney Won’t Buy Treatments, Strategy Will! US Drug Law and Regulation — Beyond the FDAAs the leader of an ultra-rare disease organization, I have quickly learned how important it is to understand every aspect of drug…Nov 24, 2019Nov 24, 2019
SYNGAP1 FoundationI AM A SYNGAP WARRIOR! HERE IS MY STORY!By Karen Altobello, Mother of TommySep 15, 2019Sep 15, 2019
SYNGAP1 FoundationBTG SYNGAP1 Scientific FrontiersScientists at Scripps Research Institute Identified the First Potential Biomarker for SYNGAP1 Disorder and Improved Function in Adult Mice…Sep 12, 2019Sep 12, 2019
SYNGAP1 FoundationWhat is it like having a child with SYNGAP1? It’s A Blessing!While everyone’s experience is unique, I can tell you one thing that is the same; it’s not easy and pretty much unpredictable. I could…Aug 15, 2019Aug 15, 2019
SYNGAP1 FoundationWhat will it take to tame the Wild West of CBD?Contributing Authors: Monica Weldon, Christian Rubio, Leslie Baldwin Ruthven, Candace Lerman Esq. and Tracy Salazar PhDMay 4, 20191May 4, 20191
SYNGAP1 FoundationHow do we do it?Collaboration and education is the key to accelerating to treatments in the rare disease community. There must be a concerted effort to…Jan 28, 2019Jan 28, 2019
SYNGAP1 Foundation“Did_dee”“January 21, 2019: I woke up on this Martin Luther King Jr. holiday, turned on the television, and of course, the first thing I heard was…Jan 22, 2019Jan 22, 2019
SYNGAP1 FoundationBeautifully and Wonderfully MadeBy Brenda, SYNGAP1, United States, January 16, 2019Jan 19, 2019Jan 19, 2019
SYNGAP1 FoundationHow the Story of SYNGAP1 StartedIn preparation for Rare Disease Month I’m sharing a hidden piece of our history.Jan 18, 2019Jan 18, 2019
SYNGAP1 FoundationOur 2019 Theme — Striving For ExcellenceIn 2018 Bridge the Gap — SYNGAP Education and Research Foundation achieved many milestones and goals we set out to accomplish. The…Jan 5, 2019Jan 5, 2019
