Alex ChoiinDHCobserverMoving Mountains for Max: How a Facebook Group Helped a Mother Fund a $2.8 Million Drug for Her SonNeighbors used auctions and bottle drives to help a mother raise money and influence government policy.Apr 14, 2021Apr 14, 2021
Alex ChoiinDHCobserverWatching the Watchers: Facebook Group Tracks ALS Clinical TrialsAmyotrophic lateral sclerosis leaves patients unable to walk, talk, or eat. One person’s diagnosis triggered this group’s launch in 2019.Apr 14, 202135Apr 14, 202135
Alex ChoiinDHCobserverA Disease So Rare It Doesn’t Have a Name: How One Mother Raised Money with a Facebook GroupThe neurological disorder resulting from an SLC6A1 mutation is so rare it doesn’t yet have a name.Apr 14, 2021Apr 14, 2021