Amanda KernOur Brightline experience: traveling with a disability and service dogToday we took our first trip on Brightline to West Palm to see Dr. Dobbs who cares for Chance’s orthopedic challenges related to his spina…Mar 19Mar 19
Amanda KernWhy my son should be permitted to do wheelies in his wheelchair at school + Benefits of wheelies.My son Chance was born with spina bifida – a birth defect which impacts his mobility. Due to his disability he’s used a wheelchair since he…Mar 6Mar 6
Amanda KernHope receives a 2021 WEC ScholarshipI’m so excited to announce that our baby girl, Hope, was awarded the Women’s Executive Council scholarship. Hope was one of about 30 women…Aug 19, 2021Aug 19, 2021
Amanda KernPreparing for our telemedicine visit with Dr. DobbsDue to our entire family getting sick with covid, we were sick for about three weeks which lead us to cancel our in person appointment…Aug 16, 2021Aug 16, 2021
Amanda KernWhat you need to know if you get CovidOn July 26th, 2021 Covid hit our home. By the end of the week, our entire family tested positive. I’ve shared our family’s experiences…Aug 11, 2021Aug 11, 2021
Amanda KernThe blessings that come with having a child with spina bifidaJust over a nine years ago I had never heard of a neural tube defect or spina bifida. In fact, nine years ago I would have told you spina…Oct 17, 2019Oct 17, 2019
Amanda KernHis ability mattersHaving a child born with a disability has put a lot into perspective over the past 8 years. Today I finished a special project that I hope…May 23, 20191May 23, 20191
Amanda KernYes, another surgery.Spina bifida is a complex condition to understand. Today we learned Chance will require a surgery to detether his spine. Yes, another…Apr 24, 2019Apr 24, 2019
Amanda KernMy son born with spina bifida was denied Florida’s medicaid waiver. Here’s our response.Florida – you can do better for people born with disabilities.Apr 23, 20191Apr 23, 20191
Amanda KernChance’s new ortho issues and surgery“Trust your instincts” is often what medical professionals tell parents.Mar 19, 2019Mar 19, 2019