Open Letter

  • How is the datastore financed?
  • Has the NHS considered the trade-offs? What trade-offs specifically?
  • What do these considerations look like?
  • What agreements are in place with each private partner?
  • What is the value of the contract with each private partner?
  • Will the private companies be able to use the product trained under the agreement with NHS to improve the future products provided by private companies? If yes, what applications will product(s) trained by NHS data have and for what purposes will it be used.
  • Will any additional agreements, or amendments and changes to existing agreements be shared with the public?
  • Will the NHS be able to easily switch development partners if needed?
  • Will the datastore make use of software controlled by one of its private partners? What software?
  • What intellectual property may be created throughout the development of the datastore? Who will hold these rights?
  • What specific data will each party have access to?
  • What are the terms governing these parties’ usage of the data?
  • To what extent will data access by these parties be audited?
  • Has a Data Protection Impact Assessment been made for each of these partnerships? When will such an assessment be made public? If they are not made public what is the reason for not disclosing them?
  • What data sources will be pooled together in the datastore and who will have access?
  • Who does this put at risk and in what way?
  • What measures are in place to protect the most vulnerable?
  • Have these measures been reviewed?
  • Who is actually doing the risk assessment? And when?
  • For what duration is the data collected and what happens when that period ends?
  • If the exit strategy depends on the pandemic ending, then what criteria are used to determine when the pandemic is indeed over? (i.e. when is the promised destruction of the datastore triggered?)
  • What public facing documentation do you intend to provide describing this datastore and the various data sources?
  • Will further use of the datastore by the Department of Health Care Services, or its partners, outside the scope as currently defined, be communicated with the public?
  • What party do you intend to use for privacy compliance and security auditing of the system

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Mozilla Fellow working with AlgorithmWatch, researching data trusts / data governance models.

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Anouk Ruhaak

Anouk Ruhaak

Mozilla Fellow working with AlgorithmWatch, researching data trusts / data governance models.

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