A World Inside His Head
I couldn’t wait to become a parent. When you are a mum it is difficult to describe how you know your baby before they are even born. How you can almost feel their personality and their spirit. The day you finally meet that little whirlwind bundle that is going to change your life is the single best moment. Everything else fades as you marvel at this person that you have created.
You watch them grow, you help them to learn, you support them through everything.
Meeting my son, I knew he was special. And not just in the conventional sense that every mum feels about their child.
As I have watched him grow, things have been difficult. And not just normal parenting difficult but ‘everything in the world is impossible for him’ difficult. Receiving an official diagnosis of Adhd, Aspergers and Higher Functioning Autism around his 6th birthday, I had mixed emotions. I knew it was coming, and I felt almost a sense of relief that I wasn’t crazy. Then I felt guilt for being relieved, then guilt for feeling like I had done this to him. Then fear that he had to live with this for the rest of his life.
And the worst part of it all- nobody around me understood. Even my family don’t really fully understand what living in my house is like. I was lost, and didn’t know where to turn.
I had spend so many nights crying and trawling the internet- not out of wanting to change him, he is the single best thing in my world and I love every single part of him- but out of a need to help myself understand my son. To understand his world and the way he views life- I needed to know him.
Out of pure chance more than anything, I stumbled across a charity that has totally changed my life. The level of support and care they give, the community forum of parents who understand, and not only understand but can give advice, it is a completely incredible place. I know that I can call them anytime, and that they will be there with whatever support they can give.
I am so passionate about this charity because they have giving me a way to relate to and understand the amazing mind of my child. Every day in my house can be a battle- they offer a sanctuary. My son fights battles just to get out of bed in the morning, and I burst with pride at the steps he makes to do the things he wants to do.
The national autistic society has done amazing things for us, without them I don’t know what I would have done. I am running to raise money for this charity this year, because they are not a well supported charity. There is still so much stigma from people who don’t understand, it is something that needs a lot more education.
I could never thank them enough for the wonderful people they are. I hope that they know just how much they are needed by people like me and my son.