The Wrong Disease

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My mom requires 24-hour care for a disease that is both debilitating and painful. A nurse monitors her physical condition and medications. Aides help her toilet, shower, dress, and eat. Activities and meals are designed to ease the effects of the disease and a large and busy staff constantly supervises her safety and well-being. This care costs $6200 a month and is not covered by Medicare. In one year, she has spent $72,000 of her own savings. Because she is physically healthy, my mom may need this care for 5–10 more years. Perhaps longer. Once she outlives her savings, she will be impoverished enough for Medicaid and we will struggle to find a facility specializing in her disease that will accept Medicaid recipients. Most do not. …

Darcy Lohmiller

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