Dnavid
Spent last 15 years trying to use DNA to improve health and well-being. Launching DNA ID https://dnavid.com (alpha)
Madeleine Price Ball, cofounder of the Open Humans medical data-sharing project, proposes three laws of personal data rights: the right to access raw data, the freedom to share it with anyone you choose, and the freedom to use it however you want. You could sell it. You could download it and make knitting patterns from it. Or you could donate it to the greater good.
Our Medical Data Must Become Free
K McGowan
27814
Seems to me like you should be able to limit its use as well. Some people would be ok sharing their data with non-profit research, not so much with for-profit pharma companies. We should be able to choose to exclude sharing our data with organizations whose policies we don’t agree with.