Dawn Setzer
Aug 31, 2018 · 3 min read

I am 47 years old and was (just this year) diagnosed with a rare, inherited collagen disorder called Ehlers-Danlos Syndrome (EDS). I believe I also have an often co-occurring disorder called Mast Cell Activation Syndrome (MCAS), but I am currently in diagnostic purgatory. All my life, I have encountered bias in the medical profession. I’ve been misdiagnosed with everything from Lupus to possible MS and I have been given treatments and medications that have made my situation worse and (very recently) nearly…

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Dawn Setzer

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I am 47 years old. I have a rare, inherited collagen disorder. All my life, I’ve been fighting for appropriate medical care. I have decided to share my story.

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