Dawn Setzer
Aug 31, 2018 · 1 min read

Thank you for sharing your perspective on the documentary experience. I am 47 years old and was (just this year) diagnosed with a rare, inherited collagen disorder. All my life, I have encountered bias in the medical field. I’ve been misdiagnosed with everything from Lupus to possible MS and I have been given treatments and medications that have made my situation worse and (very recently) nearly took my life! It is so very important that patients share OUR TRUTH! We must educate each other. We must advocate for each other. Our lives truly depend on it!

Dawn Setzer

Written by

I am 47 years old. I have a rare, inherited collagen disorder. All my life, I’ve been fighting for appropriate medical care. I have decided to share my story.