Glenn Schweitzer is the founder of Mind Over Meniere’s. Having battled with Meniere’s since his early 20s, Glenn is an Encyclopedia of coping strategies. Tune in to hear them.
Below is the transcribed podcast:
Hello and welcome back to our podcast deep and dizziness. My name is Dr. Pearce along with Dr. Nava. We specialize in leading vestibular diagnostic testing and therapeutic techniques. Today’s show is going to be fantastic Chelsea take it away.
All right, so on our show today we have the amazing Glenn Schweitzer. He is an entrepreneur, blogger and creator of Rewiring Tinnitus and Mind Over Meniere’s blog. He is passionate and determined about helping those who suffer with vestibular disorders and is also an ambassador board member for the Vestibular Disorders Association. He continues To spread hope and awareness for tinnitus and Meniere’s disease, and we couldn’t be more grateful and excited to have him here on the show. So welcome Glenn. How, are you?
I’m good. It’s great to be with here with you guys today. I really appreciate you having me.
We’re excited. So let’s just break it way down. So for the listener, what is Meniere’s disease? Give us the details.
Sure. Yeah. So Meniere’s Disease is an inner ear vestibular disorder. It is considered an idiopathic condition. So meaning we don’t know what causes it. It’s generally a diagnosis of exclusion where all other possible known causes of the symptoms are ruled out. But it’s typically characterized by four primary symptoms and they occur episodically or like in clusters and attacks of vertigo. It typically is rotational vertigo where the room feels like it’s kind of spinning around you. And then dizziness is associated with that as well. And sometimes the dizziness can be ongoing, it’s kind of fluctuating, also a feeling of fullness and pressure in the ears that can be very uncomfortable and painful. And also tinnitus which is ringing in the ears or really, it’s just bringing it any perception of sound that isn’t there.
And it is a really difficult condition to live with because not a lot of doctors are very familiar with it, like a lot of general practitioners and EMTs aren’t very familiar with it. And a lot of people go for a long time and really struggled before they ever kind of get any sort of sense of diagnosis or feeling of hope and direction. And so it’s a tough condition to live with.
I was diagnosed at 24, which as you can imagine, it’s hard to be diagnosed with so young. But that’s a pretty good basic summary of the condition. There’s a lot of secondary symptoms as well that kind of result from this. It impacts your quality of life in all sorts of different ways from fatigue, anxiety, brain fog, cognitive impairment, so it can be quite debilitating when it’s bad. But as you mentioned, my whole purpose with all this is to try to spread some hope. And let people know that, as scary as it all is that there is hope.
Well, tell us your story. Let’s get to it.
Yeah, yeah, sure. Well, to back up a little bit further. How I came to this idea in the first place I kind of always had an entrepreneurial spirit. And I was working for myself for a while when I first had the initial idea to start Mind Over Meniere’s. And when I decided to write a book, it didn’t really feel like this possibility. My girlfriend and family at the time seemed to think it was. And I wanted to start some kind of writing project for a while and had been brainstorming ideas of things to write about. It wasn’t really obvious to me at first to write about Meniere’s Disease. I had been managing my symptoms well, and coping well for a few years at that point. And it wasn’t like something that was in the forefront of my attention and thinking all the time. So it wasn’t obvious at first. But I started thinking about, you know, how much I had struggled early on, in the early days of my diagnosis, and how I ultimately discovered all these ways to cope and improve my quality of life so much through a lot of trial and error. And the more I thought about it something kind of just clicked and I realized that I could probably help a lot of people by sharing my experiences.
When I started writing, you know, I started to understand that the most important thing that I had to offer people based on what I had gone through. But the missing piece of the puzzle for me and the missing piece of the puzzle for so many other sufferers was this idea of hope, and a very specific experience that I went through early on sort of showed that to me.
I had suffered for months and months before I was diagnosed or even saw a doctor, I was very much in denial. For whatever reason for a long time, I don’t know I was young, I guess I thought whatever was wrong with me would just get better and go away. But I was having increasingly frequent vertigo attacks. Although I didn’t know that word at the time. I didn’t know what was wrong with me. I knew I felt dizzy, like very dizzy and that it would get really bad. I thought a number of times it was food poisoning, because it would happen after I would eat like a large meal at restaurants. In hindsight, it was probably just eating ridiculously large amount of sodium which ended up being one of my main triggers my symptoms, but I always just sort of hoped it would go away even though that things progressively were getting worse. I was feeling more brain fog and more dizzy just regularly throughout the day. Even when I wasn’t having these kind of attacks, and I just kept trying to push through, but I wasn’t changing anything and it wasn’t until probably like five or six months in when I had a horrible terrible vertigo attack that just completely incapacitated me for like an hour and a half. Room spinning, holding onto the couch. Just total panic-stricken that I finally just broke down and kind of realized like, okay, something is very wrong with me here. It’s not getting better, I need to go get help.
And so at that point, I did but it was a terrible experience. And I think this experience mirrors what a lot of patients go through or have, you know, at some point or another, so I kind of just went on my insurance providers website, I found whatever ENT was closest to my house, and I drove over there. And I was really nervous. I felt sick the day after that vertigo attack. This was like a shell of myself like I had no energy. I was exhausted, I was dizzy, I probably shouldn’t even driven myself, but I did. And I got there. And I remember sitting down with this doctor and he was an older gentleman. Very cold, very little compassion there. And he asked what was wrong and I remember telling you about the vertigo attack, and then and then kind of working backward and telling him about all the ear fullness and this pressure I was feeling in my ears, and how my tinnitus was going up and down and was having trouble hearing. And he listened to me talk for a little while. And the next thing I know, he’s looking at me and he says, okay, he doesn’t want to order any tests or do anything. He just looked at me and he says, everything you’re describing is known as Meniere’s Disease. This describes your symptoms exactly. You need to make all these changes to your life that describes vertigo, the hearing loss is going to continue to get worse. You need to cut out all these things you need to make all these changes you need to go on these different journeys. And drugs.
And I’m hearing words like endurable, change everything and I’m starting to panic. And when I get nervous in like situations like this, I just started asking a lot of questions. I’ve always been a type of person who wants to understand what’s wrong with me, understand the doctors thinking and so I started asking questions. And he took that to be like me questioning his intelligence or something because he started yelling at me. And he was like, “What do you don’t believe me? You think I’m lying to you?” And so it was just this horrible experience like he didn’t realize that I was just falling apart. I was just in a full-on panic. He’s telling me all these things. I have this incurable chronic condition. I’m going there thinking, “Okay, well, whatever’s wrong, you know, he’ll help me I’ll get I’ll get past this and get on with my life.” And that’s not at all what happened. And when I left his office that day, and I just had no hope at all, like I just was crushed. I really for a period of time believed, like believed in at the core of my being that my life was just over.
That I would just have no quality of life ever again. And I remember getting home from that appointment and getting on the computer and starting to Google and research Meniere’s Disease. And everything I found was conflicting with everything else I found. And it was all absolutely terrifying. And so just the worst-case scenario just became fixed in my mind like all these horrible reports of reading all these people suffering in all the worst ways imaginable. I just went into a deeper and deeper depression for a while.
I still took the medications. He prescribed me some steroids I did a course of prednisone got me under radix which is the a lot. Pretty standard first-line treatments. And so I eventually started taking them. I started trying to cut out salt making some of the changes, but it wasn’t really helping very much like maybe my peer pressure, I felt a little encouraged. I remember the first thing that started to change a little bit with some of the ear fulness was going away a little bit, but I was still having attacks. I was still dizzy. I still had that youthfulness, I was horribly brain fog. I was like really struggling in work and in school. And, you know, I went on like this for a little while.
I was in this dark place. And I remember at the time, my girlfriend Meghan, who’s now my wife, and also the rest of my family, they kept pushing me to get a second opinion. But I had, in some ways, kind of like given up. I think I’m just sort of resigned to my fate like I was, you know, just going to be disabled. And that’s how it was going to be. But ultimately, one of my family members, my grandfather rather had found a specialist at the University of Miami, which is about an hour away from where I live. And it was a neuro-otologist. Although I didn’t know that word at the time, I was told this is somebody who has a lot of experience with Meniere’s, and maybe they can help and so I sort of reluctantly agreed to this second opinion. And thank God I did because that experience was completely different and it really changed everything for me.
So the second doctor was like the polar opposite of the first ENT. He was this super kind and compassionate guy who took the time and listened to everything I was telling and was happy to answer all my questions. He saw how concerned I was and made it a point to tell me about some of his other Meniere’s patients who are doing really well. He told me a lot of the things I had been starting to try were good changes. Healthy lifestyle changes. And he told me about other things I could do. Supplements I can try. He told me that if this doesn’t work, you know, there are other medications, even surgeries we can do and, you know, it was like a turning point for me.
It wasn’t even so much that it was like some new specific treatment or strategy that he wanted me to do. It was that he painted this picture of a world where there was hope, where I might be okay again, and I didn’t even know it was possible. Before that, I was convinced that my life was over. And just knowing that there was this possible path out of this horrible suffering, just knowing that there was some hope just changed everything. And so I started from that point forward fighting back and doing everything I could possibly do to improve. And that involved, not just like, trying to cut out the common things that are known to trigger Meniere’s. I had gone back to school and I was taking classes and I was kind of just eating a lot of fast food and not exercising a lot. And so I made like a real effort to just become as healthy as I possibly could outside of Meniere's Disease.
Get my fitness level up, try to lower my stress level, I started meditating doing all these different things. And then I started to slowly improve. Everything kind of came together. It’s not gone. It’s an ongoing management effort for me now but I have been able to manage really well and I know I’m lucky. Not everyone is able to manage primarily with lifestyle management and dietary management, things like that. I’m very fortunate that I haven’t had to go take medications or do any surgeries or anything like that.
But this one takeaway there was that hope was that missing piece for me. When that really clicked in my head that changed everything. And I knew that was the case for a lot of other people too. I mean, you go online and you go to any of these online message boards or support groups, and you see how much suffering and pain and desperation there is out there. And I get it, like, I had been through it. But that idea of hope sort of became the core idea of the whole project of the book and you know, this idea that no matter how much you’re suffering, or how bad it may seem right now that there is hope. And so I started writing and kind of framing everything around that. And I saw it resonate. There weren’t many people talking that way about Meniere’s Disease at the time. I started the book first and then I started the blog shortly after as a way to sort of test out how my ideas would be received because it was all just based on my own personal experiences at that point. And people really responded positively to all these articles and ideas I was putting out. And I just kept it all going from there. And it’s just built up and built up over time. From there. So that’s the short version of my story of what happened in the early days, and also how this all came together.
Well, you’ve documented your entire journey with Meniere’s. What is it like to be an open book with your experiences?
That’s a good question. At first, it was honestly kind of difficult. I had been a somewhat private person, I guess you could say before all of this and so the idea of permanently and publicly associating my name on the internet with this debilitating, chronic illness was sort of a hard thing for me to wrap my head around. But at the same time, I also felt I had something to offer and I saw that the impact it was having too. And that was very encouraging. I felt like I was helping people. And that felt good.
And if I was working some kind of traditional or corporate nine to five job or if I had that sort of path in my head as like, where I was headed in the future, I don’t know that I can’t say for sure that I would have ever written about Meniere’s Disease. Or maybe I would have used a pseudonym or something like some other Meniere’s authors have done.
Um, but remember, I had already had a small business that I started. I was supporting myself, I already knew that working for myself was sort of the thing I was going to do at this point. I can’t even imagine working for anybody else. And so once I sort of just committed, those fears of like people finding out about it, and that impacting my life negatively in some way, were low enough that I could just sort of commit and get started. And so I just started publishing the blogs and sharing them and once he was out there and I saw the positive feedback and I saw the message resonate, I started to feel a lot more confident about it and it stopped being such a big concern.
What’s interesting is over time, I started to realize that the blogs and videos where I was just being very vulnerable and talking about that, instead of just being instructional, like, here are how I deal with this problem, here’s these techniques to try. When I would write about just things I was struggling with, and, when I would have symptom spikes, or just go through hard times like that when I was most vulnerable, that’s what people really resonated with and those articles and videos would always end up being shared the most and I would get the most feedback. And so once my story was out there and my name was publicly attached, there’s no coming back. I just felt a lot more comfortable and then I just always tried to be just authentic and real. But it is kind of weird in some ways, but then in other ways to like it doesn’t in my normal day to day life with friends. My friends, my family, everybody knows what I do and the books that I’ve written. But it’s not something that you know just comes up all the time just meeting new people and things like that. So it’s been a very net positive thing significantly net positive thing overall. But it is weird to live with your name being publicly associated with a health condition. That’s for sure.
I kind of want to know who that first doctor was. But don’t tell me.
I can tell you if you want.
No, no. You found the right person.
Yeah. And I just got lucky like people go years without finding a doctor. If you live in a rural area, like I hear from people all the time, where there’s barely any ENTs and none of them have really any experience with Meniere’s Disease or diagnosing and treating other vestibular conditions. And it’s hard to know what to say. Some people end up having to travel and then you travel and maybe you don’t even get a good doctor.
So what was the good doctors name?
His name is Dr. Fred Telushi. I think he’s the head of otolaryngology at the University of Miami Health. Or he was at the time and I saw him a bunch of times early on and then I sort of just I haven’t had to even go on a regular basis. I see a local ENT here for allergy-related issues and I had my hearing checked regularly but I haven’t had any significant Meniere’s episode relapses where I feel like okay, I need to pursue some medical treatment or follow up in some new way.
I’ve been able to mostly manage the worst of the worst and I haven’t had any major vertigo attack in quite a few years. I still get dizzy. It ramps up from time to time. I’ll get a lot of ear fulness sometimes or the tinnitus will spike up and down with the ear fullness. My hearing loss will fluctuate. Although I’ve been lucky to avoid permanent hearing loss and that’s something that the good doctor said. That was my biggest fear was like my first doctor kind of had me believing that I was going to just slowly go deaf in both ears. I have bilateral Meniere’s and so the unless you wanted he ran all these other tests to confirm diagnosis but he also was very clear about if you can get ahead of this and are able to manage your symptoms and somehow be able to stop the attacks there’s no reason to just expect to go deaf slowly over time. And he’s been right so far. When it flares up, the ear fulness comes back, if you measured my hearing, and during those times, I’m sure you would see low to mid-range hearing loss. And it did. They did measure that, initially, but I had my hearing check just a couple months ago on a great day. And my hearing was normal. So I’m very lucky in that respect.
So how do you manage your symptoms? How do you work through your symptoms? What are the tips and tricks?
Well, so working with Meniere’s is a big challenge. Even for me and again, I’m not having like some of the more severe symptoms on a regular basis, but it is something I still struggle with. Because one of the unfortunate realities of living with Meniere’s disease and also a lot of other chronic illnesses is that even if you’re not actively experiencing vertigo or dizziness, you still often have to deal with those secondary symptoms I talked about in the beginning, like fatigue and brain fog. And so brain fog is kind like a fluctuating calm clouding of consciousness, like this cognitive impairment that makes it really hard to focus and feel motivated and remember things. It affects executive function. I walk into rooms and forget why I walked in there. It kind of affects your memory and recall that kind of thing. Words get stuck on the tip of your tongue. And those sort of symptoms are often some of the most frustrating. Especially if you’re used to being self motivated or productive person. I struggle with this a lot, but I know a lot of people, a lot of other people too, who still experienced the more severe symptoms and will still say that brain fog and fatigue and not having the energy and cognitive ability is the most frustrating or most difficult thing to cope with. But I do have a few different strategies that I use depending on the situation.
A lot of what I do is preventative, and has more to do with ongoing lifestyle management in an effort to just manage my health overall. So I have a lot of healthy habits and routines that I follow every day that helped me to maintain a baseline quality of life. So for example, I go to bed and wake up about the same time every day. I make a real effort to protect my sleep as much as I can although we have a toddler at home, he’s not sleeping great right now, but that impacts it. Um, I’m also very disciplined with my diet and that was big early on. Going on a low sodium diet helped a lot early on to the point where like, one sodium heavy meal within 15 to 20 minutes my symptoms would start to feel the ramp up of symptoms. So understanding my dietary triggers and that sort of thing helped me early on but now I’ve transitioned to a maintenance diet with a more carb restricted diet for some reason. Like I’m not doing keto or anything like that. It’s more just avoid processed foods. I keep my sodium down. I don’t have to pay very close attention to my sodium anymore not as much as I used to. But point is I’m very disciplined and I manage my diet very carefully.
I exercise regularly. I try to keep my physical health in shape. I meditate every day. Mindfulness is big for me right now, but I’ve done some meditation every day for years. I write in a journal, I’m in therapy to manage stress. I have all sorts of other relaxation things I do to try to just give myself this baseline of health to build on. Routines have always been really big for me. That’s something I wrote a lot about in the book. Because it’s hard to make any positive changes especially when you’re struggling in like debilitated by this crazy balance disorder. So I’ve always tried to like set up kind of habits and routines to sort of just automate the healthy but difficult choices that I have to make on a regular basis to help me feel better.
You know I should mention that one thing that kind of sets my situation apart is I work for myself from home so that obviously gives me like a lot more options and freedom that not everybody has and I totally get that. So like on a lot of days if I’m not feeling well like I can just stop working and rest for a while if I need to. If I don’t have anything major going on the thing I struggle with on those days is feeling guilty and lazy when I take days off. It’s like a fine line sometimes between “Am I really not is it really better to rest. Am I really not feeling well enough to push through like is resting the best thing I can do. That’s a hard decision to make when you’re a very self motivating type A productive person.
But I’m getting better at it and I’ve had to force myself to learn this lesson over and over again that rest is not laziness. When your symptoms are spiking, or you’re not feeling well, it’s medicine. So I’ve tried to like internalize that.
Just yesterday for whatever reason, I just was tired. So much brain fog and I had I worked half a day and by like one o’clock I just had nothing left. And even though I had a lot more to do, I just decided to end it and I was just okay with that, and I just rested and I’m learning to be okay with that. But there of course, are a lot of times when there’s things I have to do whether work or otherwise, when I don’t have a choice, right, where I have some sort of responsibilities, and I need to push through my symptoms and get things done regardless of how I feel. And so when that happens, and it does happen, from time to time, sometimes more than others it’s generally from going through a stressful period of time or a lot going on in my life, that tends to happen more. But when it happens, I try to do a few different things. So I’m happy to talk about that.
So number one is I try to manage my priorities first. So even on my worst days, I’ve sort of learned that my most productive time of day is first thing in the morning when I’m feeling refreshed. So I’ll generally Sit down first thing in the morning on bad days, if I have to do something, I’ll look at my schedule and figure out like, what are the one or two things that are nonnegotiable, like I have to get done, or I have to do X or Y today. And then I will try to just focus on finishing that one or two things, the two most important things on my to do list and then I can let myself off the hook for everything else. And that tends to work to a point. I mean, it’s hard some days. I mean, when you don’t have a choice, you don’t have a choice and you just have to find a way to get through some times, all the other times, sometimes just I just have to get the ball rolling a little bit to kind of get into the flow of whatever I’m doing. Like if I’m writing something and I’m feeling brain fog, a lot of times the first 10 minutes is like torture. It’s like pulling teeth. Nothing’s flowing like. Trying to grind the words out of my brain. But then usually you hit a rhythm. And I may have to do a lot of editing but like, I can kind of get to a flow. Or if I’m working with one of my one on one coaching clients, after a few minutes of listening and focus and interacting, I can kind of just, you know, get into the zone and finish the task.
And when that’s done, I may have to rest for a while or even take the rest of the day off. But generally, I found that I can get the one or two most important things out of the way and knowing how to prioritize those one or two things has been sort of something I focused on and gotten better at. And I do a lot of other things too. Like some other tips for people out there, I’ll turn my phone on silent or do not disturb because any little distractions, if I build up any sort of momentum or flow or like I feel I’m even a little bit productive, having a phone call or an email or something come in will just totally derail. Such a fragile little spark of energy to work with. I’ll just make take myself offline so that I can just really focus on what I’m doing.
I take some supplements sometimes I’ll take things like CBD which can help me with anxiety. So if I’m really stressed out, I might take a little bit of CBD and that helps to calm me down so I can focus a little bit better.
I do this one thing that helps. I listen to this type of audio that has something called brainwave entrainment embedded into it, which is this sort of audio technology that can change your mental state. I actually make tracks like this to help people with brain fog and stress and anxiety and all these different symptoms, but it kind of puts you into a more stimulated, focused state without the side effects of having to drink something like caffeine or take some stimulant that could trigger my symptoms. So I’ll listen to that. If I’m working at the computer and I don’t need to be on the phone. or anything like that I’ll have brainwave entraining on sometimes for a little while to kind of just give me a little bit of a focus boost. And then I’ll also double down on all the self care stuff. I’ll do extra meditation. Instead of doing intense cardio, I’ll go for a walk. I’ll take walks instead, which kind of help to clear my head out. And then the other thing is when I’m feeling good, I try to just really take advantage of that and get as much done as possible so that I can afford myself the time to rest when I need it on bad days.
Yeah, and I think that’s so important because obviously your media outlet is called Mind Over Meniere’s and we completely agree that there’s always a mental component to treatment and recovery in any medical situation. To you, what role does the mind play in coping and treating because you’ve gone through some really good advice and strategies to help people build their mental fortitude?
I’ll be talking about this from a little bit of a different way. It’s funny, when I came up with the name when I was trying to think of the title for the book. It was sometime in the beginning, but when I came up with the title, it was just supposed to be a catchy title. Like I was trying to think of something that would be easily memorable like it. I could say it once that someone who’s suffering and they wouldn’t forget it. You know, most of what I write about is very, action and technique oriented. I don’t focus a lot necessarily on mindset, I guess you could say. And with the title, I hear from people from time to time who don’t actually read anything, they just see the title and they’re like, “Are you trying to tell me like this is some sort of mind over matter?” Yeah, no, absolutely. I absolutely was not trying to imply any sort of mind-matter connection. It was just supposed to be a clever play on words.
You definitely can’t think your way out of these kinds of terrible symptoms. But let me talk about mindset for a minute, though, because mindset does in another sort of key component here and there, and it does play an important role in it in a few different ways.
But the first thing with mindset is, you know, if you’re struggling, you sort of need to find a way to understand and believe that there is hope for you. Because you’re never going to fight as hard for your health to improve your symptoms if you just think that your situation is hopeless. And I see that hopelessness a lot.
There’s actually an interesting psychological concept that explains this pretty well. It’s called learned helplessness. It certainly applies to what I went through early on. It’s this idea that if a person or animal is repeatedly subjected to a horrible situation that they think they can’t escape or control in any way, you eventually just stop trying to get out of it. Even even if the opportunity for escape is presented in front of you, you won’t take it because you get to this point where hopelessness becomes the default. So it’s super important to have hope.
The challenge here, which I sort of touched on before is that you’re going to find a lot of really scary information online when you start looking into this and that’s going to give you a lot of really negative thoughts and anxiety and that anxiety is going to only make the symptoms worse. And so trying to hope is step one, but along with that is trying to find ways to manage your stress levels outside of this to relax to calm down. Breathing techniques and relaxation techniques. That’s also super important. Um, so that that’s the first piece of this.
The next piece has to do with acceptance but not acceptance in the traditional sense. I mean it more in like the stoic philosophy sense. Meaning like, “Okay, I have this terrible chronic incurable condition. And I can’t change that. So what can I change? Like, where can I put my energy? What actually do I have control over? And let me put all my energy there, rather than just trying to figure out how did this happen or mourning, the things that have been left behind.”
Just focusing all of your energy on finding those levers to pull that may increase your quality of life. Now, when I was writing my book, I came across an interview with Michael J. Fox, where they asked him about living with Parkinson’s. And he summed it up really well. He said, I don’t have any choice whether or not I have Parkinson’s, but surrounding that nonchoice are a million other choices that I can make. And that applies directly to Meniere’s. That applies directly to most chronic illnesses.
So just committing to focusing on figuring out what are the things that you can control? Where can you spend your energy that’s going to actually make an impact here.
And then the third piece of the puzzle of mindset which is related to the last few things is just not never giving up. You know, Meniere’s is such a complicated condition where every case feels like it’s unique, right? No single treatment works for everybody. There’s many different treatments and supplements and things you can do like surgeries. There’s so many different things you can try. But no single treatment works for everyone. My gut feeling here is that it’s probably some kind of like basket diagnosis with multiple underlying causes and the same or a very similar set of symptoms, but also like different underlying conditions.
Some research seems to be suggesting that but for the time being like just being willing to fight and not giving up it’s so important because you never know when you’re going to find that next thing or that next combination of things that actually moves the needle for you. And you have to be willing to just keep fighting and looking for new ways to improve your quality of life. And you know, I understand that it can progress to a point where you may never be able to restore quality of life to what it was before. I still live with limitations that are not wanted. My quality of life has changed but I’m also the healthiest I’ve ever been and have been ever since my diagnosis. It started me on a path of learning everything I can about health and trying to improve health and fitness overall. It led me into a lot of new and interesting places and just being willing to fight, and just always trying to find that next thing that might help. I think that’s really important with mindset and something that I hope I wish more people could grab onto.
Yeah, it’s very evident that what you’ve gone through with Meniere’s coping and treatment is undoubtedly a very difficult task. And that kick-starting patients on their right path with some of the tips and tricks that you’ve been able to provide and curate over the years are very impactful. So, I know you have a couple of books out there. You have some sound mixes for tinnitus relief. And some really great resources on your website. What’s next? What do you have on your docket next for Mind Over Meniere’s?
Yeah, sure. So with Mind Over Meniere’s specifically, right now I’m putting some energy and effort into my Meniere’s Disease support group on Facebook. And now it’s the largest on Facebook. We have something like 17,000 active members right now. And so I’ve participated in it and moderated it for a long time. But I recently decided I wanted to try to find better ways to distribute information through the group and provide more direct support there. If any listeners want to join our group, it’s facebook.com/groups/menieresdiseasesupportgroup.
I have some different articles and videos I’m going to be making some point soon. More than anything else, over the last while I’ve been really focused on helping people with tinnitus. You know, it’s funny because tinnitus was like one or two pages in my first book and Mind Over Meniere’s where I talked about how I found relief from tinnitus and how I was able to habituate. And it was like more of a footnote than anything else. It was like I had this one idea that really worked for me. And that was the end of it. But I started hearing I got so much feedback. So many people reached out to me about that one page in the book about that one technique, these meditation techniques I came up with that I realized. It’s really a symptom rather than a condition itself and a lot of other conditions cause tinnitus as well as Meniere’s disease.
So by helping people with tinnitus, I’m able to like help my current audience but also help a lot more people. So I’ve been putting a lot of energy there. And so right now I’m working on a bunch of new audio tools to help people with meditation and to better cope with spikes and to habituate faster. I’m doing a lot of one on one work. I have health coaching and peer support service I do for fertility patients, where I teach some of my strategies and it’s nice for a lot of people because they’re connecting with somebody who’s to been to hell and back with all of these symptoms and tinnitus specifically.
Also, my biggest project right now is I’m working on like a really comprehensive online video course to try to teach my habituation strategy in a way that’s not just a one on one thing to make it more affordable and accessible to a larger number of people. But all the while I’m making new content and trying to spread my messages of hope to as many people as I can reach.
We love that and I think that’s really important that we get you plugged in and get our listeners plugged in. Where can people find you?
Yeah, on Facebook you can you search Mind Over Meniere’s or Rewiring Tinnitus. So Mind Over Meniere’s and rewiring tinnitus calm are my two websites. The tinnitus one is obviously all focused on how I found relief from tinnitus. My habituation strategy is not based on getting rid of the sound but changing the way you react to the sound and so that your brain can start to tune it out like you do other meaningless sounds. So you can find all my work on those two websites. You can reach out to me on Facebook. I have a page for rewiring tinnitus and Mind Over Meniere’s. And if anyone wants to email me directly You can reach me at firstname.lastname@example.org or email@example.com. I’m happy to connect with people and answer questions and try to help however I can.
I love it. Well, thank you so much, Glenn. That was an incredible episode with lots of substance to it. So thanks for listening, to our listeners. And remember if you want to support what we do, share and subscribe. For info on us, you can visit us at dizzyandvertigo.com and we really appreciate it, Glenn.
Yeah, come back for tinnitus podcast.
Sure I’d be glad to It was my pleasure thank you so much guys for having me. I really appreciate it.