5 Principles for Patient Centered Measurement

Patient Centered

In September 2016, I participated in a 2-day, in-person meeting devoted to answering the question:

Thanks to the American Institutes for Research who hosted the event and to the support with funding from the Robert Wood Johnson Foundation, the Gordon and Betty Moore Foundation, and the California Health Care Foundation,

The get together brought together 55 people representing a wide range of health and health care perspectives. It included patients, caregivers, and patient advocates who constituted the largest group. We also had representation from payers, researchers, clinicians, health care organization leaders, purchasing groups, policymakers, and funders.

We were asked to reimagine health care and measurement through the lens of patients’ needs and preferences. We discussed key themes from sessions that were held with the larger group, sometimes break-in into smaller varied groups and built upon these themes to create a vision of measurement that is patient-centered. The small groups created source material that was then processed by the incredible supporting and facilitation team who pulled so much material together in coherent packages and presentations.

We explored ways to drive progress toward patient-centered measurement — health care measurement driven by patients’ expressed preferences, needs, and values that inform progress toward better health, better care, and lower costs.

Patient-centered measurement involves partnering with patients in a meaningful way to decide what we measure, how we measure it, and how we report and use the results of measurement. There’s a novel thought — partnering with patients to find out what they are looking for out of the healthcare system. But it’s not just about the patient and needs to include the concerns of other key stakeholders such as health care providers, healthcare organizations, payers, insurers, and policymakers

5 Guiding Principles for Patient-Centered Measurement

We came to 5 guiding principles for Patient Centered Measurement

Five Principles for Patient-Centered Measurement Patient-centered measurement is:

  1. Patient-driven: Patients’ goals, preferences, and priorities drive what is measured and how performance is assessed.
  2. Holistic: Measurement recognizes that patients are whole people and considers their circumstances, life and health histories, and experiences within and outside of the health care system
  3. Transparent: Patients have access to the same data as other stakeholders and understand how data is used to inform decision- making around care practices and policies
  4. Comprehensible and timely: Patients and other stakeholders get timely, easy-to-understand data to inform decision-making and quality improvement
  5. Co-created: Patients are equal partners in measure development and have decision-making authority about how data is collected, reported, and used.

You can find the full report Principles for Making Health Care Measurement Patient-Centered

These principles offer a vision of measurement that is patient-driven, holistic, transparent, comprehensible and timely, and co-created with patients, while driving meaningful change toward better health, better care, and lower costs. When translated into action, the 5 principles of patient-centered measurement transform measurement in ways that reflect what patients say they need and want.

It was a real privilege to be part of this group and contribute and learn from others and their perspectives. Feel free to share the report and findings with others and encourage you to think about the ways in which you and your organization can contribute to this shared goal of making health care measurement patient-centered.

Leave your thoughts and feedback below or weigh in online on twitter tagging your comments with #ptcenteredmeasures

Originally published at incrementalhealthcare.com on May 17, 2017.