I’m not sure if you follow any writing by autistic advocates like Amy Sequenzia, but those of us…
Sue Redekop

I don’t.

I was referring to a personal experience. And I am sorry I am just now seeing this…

I appreciate your contribution to the conversation and actually, I agree with you. (Maybe that’s surprising, I don’t know)…

I agree because to me it is very different for a person who is speaking for themselves, about themselves in the way they are most comfortable. I think word order is important to be conscious of for people who are referring to others.

I have no issue whatsoever with you calling yourself whatever you like in whatever order you choose to, but if you aren’t given a choice and are referred to in a way that some neuro typical people might refer to you — without regard for or consciousness of — how that might feel for you, I might nicely explain the story above.

I’m glad you feel empowered by ordering the words the way that you do. I’m very happy to hear that it works for you. We shouldn’t assume that it works that way for everyone, right?

It’s kind of like the politeness of addressing someone “Mr.” or “Miss” or “Mrs.” The first time you talk to them. When they say, “call me Frank” or “call me Susan” then we know we have permission.

If you said to me, “hi PTSD woman,” before I called myself that, I wouldn’t want to speak with you again because in my mind if you did that, you’d be taking a liberty with me before you asked if it was ok.

I am not a person with ASD, but I am a person with PTSD. PTSD informs pretty much everything about me too. It isn’t the same thing. I guess what I’m saying is that I am also not neuro-typical. And everything I do or do not do is predicated upon the limitations of that difference — I live and function as a person who has a severe disability.

I understand your words to mean you took offense to my seemingly making a choice for you. I’m telling you that’s not my intent, my intent is to present a different way of looking at it and give everyone the feeling of safety enough that they can be empowered to speak up for what their personal preference is.

Does it offend you if someone says that you are a person with ASD?

Because it offends me when my label comes before me. It makes me feel shut down and like people only see me for my limitations. It makes me feel like I couldn’t speak up and ask that they not do that anymore because they wouldn’t hear me anyway — they don’t see me — they only see PTSD.

It doesn’t have to feel that way for you, but I do think you might consider that others may prefer to have an option and a open door to make their preference known.

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