Thank you for sharing this. My struggle with dysautonomia (with the addition of daily migraines since November 2014) hasn’t been quite as debilitating as yours, but it’s close. I’m so glad that you had the generous and long-standing support of your employer, and that you continue to have some financial support as your work with your doctor to strengthen and improve. Fingers crossed for you!
Certainly few people would factor in long-term or chronic illness when designing a career or life plan. I’ve been hit rather hard for most of this past decade in particular, and there’s still the optimism that I’ll surely be feeling better in six months, or twelve. That optimistic outlook and hope for a better tomorrow is mandatory, in my experience, but it can also make for a lot of rejiggering of goals and target dates when reality fails to live up to rosy expectations.
But I do still cling to optimism and to goal-setting. Yes, it can be difficult to plan career moves when shifting symptoms and health concerns make it hard enough just to stick to a plan for meeting friends for lunch. But having a direction gives me focus in what would otherwise be some fairly boring, extended down-time.
I hope that your recovery goes smoothly and joyfully, and that you’re able to return to a happy and full personal and professional life.