Type 1 Diabetes Sucks

No question, life has changed for my entire family since this diagnosis 9 1/2 months ago, but mostly for my son Ben, 12 years old. He has been such a trooper, he went through a really low time in February, but has been doing really great since then, mostly. Every day, every meal, is a constant reminder of the the chronic disease my son will deal with for the rest of the life, unless there is a cure, which could be on the horizon in as soon as 5 years. “Diabetes Sucks!” is something my son and I have shouted from the top of our lungs to get some stress out. So it’s only fitting that this is what I name my blog.

I’ve thought since the beginning of this journey that maybe I should start journaling. I have never done this before in my life. But I don’t want to just get my feelings out I want to help other people with the things that I have learned a long the way. So today my piece of advice is don’t ever stop trying. I wrote another letter to our insurance company again today to request an External Review of our appeal for them to pay for the Omnipod for Ben. The Omnipod is an insulin pump that is tubeless. He can wear it 24 hours a day and it is controlled remotely. We’ve now exhausted all appeals internally with our insurance company. I’ve been working on this since June 1. And I’m not going to stop. I’m doing everything they ask for and I refuse to take no for an answer. The Omnipod is the best pump for my son. They say it’s not cost effective. It is more expensive than other pumps up front, but over the long haul it will provide better medical care for my son being that he can wear it for 24 hours, doesn’t have to take it off for swimming, bathing, or sports, so he has 24 hour supply of insulin when needed. This process has been very time consuming, but they tell you what to do each step of the way. They have also said the Omnipod is experimental, but it was approved by the FDA in 2005. http://www.medscape.com/viewarticle/500339 I’ll keep going until I get to the person that gives me the answer I want.