Great piece Katie! When I was first diagnosed with MS, I had a hard time finding the literature in my neurologist’s office. After my third or fourth visit, I realized that it was behind the wall inside the clinic.
It took about 8 months of persistent suggestions but my suggestion to put a sign out that said “Additional literature about MS is available inside; ask the staff for access” was finally accepted and put into place. Every time I see it, I smile.
As a patient, I am forever seeking out experiences to do more of this. As I see it, the word patient doesn’t work either — because in my experience taking care of yourself is a two way street. As we visit providers, we also need to assume responsibility for our own clear communication — as much as we can.
Thanks for all you do.