Rori DanielBiobanks Are Transforming Research | Rori DanielThe Importance of Biobanks in Rare DisordersNov 7, 2021Nov 7, 2021
Rori DanielWhy Superficial Siderosis Research Matters | Superficial Siderosis Research AllianceCage Match Funding For A CauseOct 25, 2021Oct 25, 2021
Rori DanielThe World Of Digital Awareness | Superficial Siderosis Research AllianceSharing Our Rare Disorder JourneyOct 24, 2021Oct 24, 2021
Rori DanielA Celebration Of Life And MemoryI want to express our heartfelt gratitude to Lori for sharing her mother’s story with us. Rest well MaryOct 24, 2021Oct 24, 2021
Rori DanielThe SSRA Marks Our Second Year | Superficial Siderosis Research AllianceThe Superficial Siderosis Research Alliance celebrates its 2nd anniversary on September 24, 2021Sep 24, 2021Sep 24, 2021
Rori DanielWhen you are the RARE in Rare DiseaseSuperficial Siderosis. Subpial Siderosis. Infratentorial Superficial Siderosis. No matter how your doctor officially labels your diagnosis…Jul 4, 2018Jul 4, 2018
Rori DanielOur Superficial Siderosis Community: Meet Robert CameronRobert Cameron has seen the world. Graduating with a degree in Marine Transportation from the United States Merchant Marine Academy he rose…Apr 12, 2018Apr 12, 2018
Rori DanielExploring Ayurveda For Cerebellar Ataxia And Pain ControlWestern medicine is innovative, but if you search through PubMed, you find very few drug trials for degenerative cerebellar ataxia. There…Mar 28, 2018Mar 28, 2018
Rori DanielWhat’s Your Fall Risk?If you’re living with a gait and balance impairment, this is a familiar scenario. You’re innocently walking, minding your own business, and…Mar 12, 2018Mar 12, 2018
