CareAi — Mixing Healthcare Data with Emergent Technologies for Impact
The concept of data as a currency is becoming ever prevalent as technology integrates further into our daily lives. The more data currency an entity, platform or social structure has, the more it has leverage within our world. This leverage can come in the form of powerful insights that can be used to drive interactions, provide correlations, or even change government and agency policy. Unfortunately, as people continue to use the majority of modern technologies, their data, its ownership, and thus its leverage is simply given away. This has resulted in anthropologists, data experts, sociologists, technologists, politicians, urbanists, and designers who care about maintaining a democratic future to increase their focus on data-currency.
Triem, a collaborative effort between SalusCoop and Ideas For Change, is a study that uses collective intelligence mechanisms to co-design licenses to access and use our healthcare data. Our data and, in turn, its currency is one of our most valuable assets to leverage. Collective data governance and sovereignty is fundamental in order to accelerate innovation towards the common good. Triem aspires to unpack the wicked problem of education, interaction, and the impact of healthcare data by asking thoughtful questions:
What might our healthcare system look like, given individuals or communities have agency over this data? What are the conditions under which we might share this data? How might we maintain the leverage of data currency through licensing? How might future experiences and technology be designed to facilitate leverage and empower individuals and communities?
While working on Triem, Ideas For Change was approached for a compelling collaboration opportunity. The Joint Research Centre (JRC) from the European Commission started a project around the forward-looking exploration of blockchain and distributed ledger technologies for industrial disruption called #Blockchain4EU. Our enduring drive to unpack some potential solutions to the questions raised above was our natural prerogative… and thus came CareAi.
CareAi postulates a future scenario for intelligent and anonymous healthcare by using lab-on-a-chip technologies. Supported by a distributed fabrication economy, this open-sourced design is built on top of blockchain and smart-contract supported technology. CareAi facilitates an interaction to provide anonymous healthcare advice — adding it to someone’s medical history through artificial intelligence. This history might then be used to fully integrate that person into a formal medical system later.
In this forward-looking scenario, one might be paid with a smart-contract based token system in return for providing their data, called CareAi Points. These points can then be used to drive economic interactions in the form of a valued currency, locally and at scale; exchanging economic value and intelligent healthcare feedback for anonymized data.
Governments and enterprises then pay to gain the data insight of individuals and communities that might prefer to retain their anonymity. This data-currency can then be leveraged to address policy issues around the invisibility, to European healthcare authorities, of heterogeneous individuals and their communities: undocumented migrants, ethnic minorities, or the homeless. Such policy might create more inclusion in healthcare outreach, enabling a more diverse community in identities of heterogeneous individuals and in turn, tighten our global one.
Core Interaction Stages:
1) Fabrication SMEs produce CareAi points from an open source blueprint.
2) An undocumented person donates their blood data into the CareAi point.
3) The CareAi point is loaded with Artificial Intelligence software that references a vast array of medical & diagnosing libraries. It dispenses advice with a corresponding rating of confidence.
4) This advice is coupled with a QR code with which participating healthcare NGOs can claim back any attention paid to the individual.
5) The data contributed is anonymized and stored securely on the blockchain, along with data from various CareAi points.
6) Smart contracts on the blockchain manage the rights, permission, and access to the health data.
7) A Distributed App can be used to access this data through the smart contracts.
8) Governments and corporations buy tokens with which to use the app with. These tokens are then used to pay the Healthcare NGOs and the creators/ maintenance of the points.
As we continue trying to empower and put leverage back into the hands of our global community we need to keep finding ways to get and retain agency of our data. We need to advance in:
- Creating a standardized policy to help individuals own or license their data.
- Having software that allows for accessible, distributed, immutable and trusted data storage.
- Creating education around the importance and impact of data ownership and its licensing.
- Designing experiences and technology that facilitates the creation of policy, education, and use of software between individuals and communities.
Looking back at CareAi and the progress of Triem so far, we’ve made some significant progress. However, we all still need to work together to tailor strategies and solutions in democratic and egalitarian ways. I challenge everyone, from designers and technologists to policymakers and community leaders, to create with intention. Strive to build trust between people and technology. Focus on raising the floor. Educate everyone on the benefits of data currency, governance, sovereignty and it’s collective impact.
“How might data help us to help ourselves?”
Education drives interaction.
Interaction drives empowerment.
Empowerment drives agency.
Agency drives change.
I want to thank and acknowledge those who have been working so diligently toward this common goal:
CareAi Concept Creation:
- Jordi Planas — prototype development
- Gui Seiz — project leader & concept development
- Maciej Hirsz — concept development
- Ivo Lõhmus — concept development
- Annalisa Pelizza — concept development
- Ideas For Change & Team — healthcare data & permissions consultancy
My roles: healthcare data permissions consultancy and prototype / creative technology development. Check out the repo! If you might be interested in taking this to a next level through collaboration or sponsorship, complete with federated learning, ethereum deployment, and affective computing, get in touch.
Updated/Edit: Since having written this article CareAi has been featured in a series of posts: