Thursday Thoughts

Our autism journey

I’m not quite sure how Owen’s sleep schedule is getting messed up again, but it is. He got into bed with me around midnight, he fell asleep before eight and he woke up at three, I suppose with a little help from me, but the octopus that he becomes when he is in bed with me was pushing me off the bed, so I had to move him. And from there he was awake. The good news he was happy, still screamed, but happy. Sometimes he thinks the screams are funny. He has an app that repeats his words and changes his voice, he loves it. The funniest thing he thinks is when it repeats his screaming back to him. He screams, says no screaming, lets it play it back and laughs hysterically. When the screaming is for the sheer pleasure of laughter, because these are a different type of scream and not loud, hey go for it kid -did I just say that, but when he is screaming at the top of his lungs because he is mad or upset then we have to figure this out. It’s hard when your neighbor says to you, did Owen have a rough night. I’m thankful that I have very understanding neighbors. I can’t imagine if they didn’t understand, but they are very supportive and try to help in every way they can. This is a reality of so many families. My house sits about 15 feet away from theirs, yet in the middle of the night when the world is calm they can hear my little boy scream out and he can scream off and on for hours. It’s daunting. Luckily he doesn’t do it as much anymore, he is calmer in general now, but the screams still come. I hope as communication grows the screams will stop. I’m going to try and keep him up later, see how the sleeping goes. I keep wondering if I need to add or adjust his supplements again. Time will tell. Today we keep moving forward. More research, more questions, more love and always the search for answers. Autism wasn’t important to me, until autism was important to me. Find your inspiration, your motivation and make your dreams come true. Smiles to all and donut daze!

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