Our autism journey — And today’s exhaustion was brought to you by last night’s two in the morning party time. Those great nights of sleep seem like a distant memory now. Owen was excited about going to church and he wanted to go at two. I tried to convince him numerous times to go…

Our autism journey — Hyper seems to be the word that describes most of the day followed by happy with a side of edgy and maybe avoidance. I’m not sure if all of those were for Owen. I think he woke up hyper. At least he woke up after four. Not much after four…

Our autism journey — Sometimes my emotions have emotions. The last week has been hard, the last two weeks really. Six days of sleep now feel like a distant dream that won’t be a reality again but even with sleep, the rollercoaster ride was up and down with Owen’s behaviors. But why did the…

Our autism journey — “Keep trying”, Owen said to me on the way to therapy. I laughed. I had asked him what exercises he was going to do with one of his therapists and he said, “play soccer”. I said, “so you want to play soccer” and he replied, “keep trying”. I never know…

Our autism journey — When you’ve had sleep for several days in a row and then you go back to a night when there was no sleep to be had it’s a jolt to the system. I’m praying and praying and praying that Owen is just adjusting back to his schedule with school and…

Our autism journey — I’m still going with Owen slept all night it’s just that he woke up a little early. He had a big day yesterday. He was back at school after being off for a whole week, the time change is still an issue, and it was his birthday, plus add in…

Our autism journey — The happiest of birthdays to my sweet baby O, my miracle, my love, my world. I cannot believe he is ten. It seems like just yesterday he was born. I am so proud of how far Owen has come. He is really making some huge strides in the last few…

Our autism journey — There is so much forward progress I’m trying to not think about the backward spirals that keep happening. I am trying to remind myself the forward progress outweighs all the other things but when you are in the thick of it I have to remind myself to breathe and I…

Our autism journey — I sat listening to the whole house shake. Stomp, stomp, stomp across the floor he goes. Then he walks back to exactly the first spot he started at and does it again. He’s over fifty pounds now. It’s making a big difference when he goes stomping from room to room…