I’m a full-time caregiver for my 15 year old son who has Duchenne…

I have a long list of struggles, but one thing that bothers me those most is everyone thinks I have a relaxing gig. It’s not a real job and I have plenty of time.

Besides the fact that he needs round the clock care, I’m homeschooling him, scheduling, Driving, taking him to appts, dealing with insurance companies, ordering/following up on medication, prescriptions equipment, all while also trying to run a household of cooking,cleaning, hone repairs, maintenance…