I’m very happy you got your Medicaid card. As hard as it is to apply for it, the acceptance of it gave you much relief and took away that anxiety.
I feel for you and understand your dilemma. I was a supervisor in the insurance world. I became disabled in the late 1980's. For the first time in my life, I was “the claimant” when I filed for Worker’s Compensation. I was treated like I never had had my job. It was awful for a little while because I had a five year old and an infant at home. I had to fight tooth and nail for compensation and finally got it but not without diligence and constant badgering.
Things will change for you but it may take a little time. Endure, continue to educate, be educated, and keep up the good fight.
My very best to you.