“Can’t help won’t” — Pathological Demand Avoidance syndrome

When Forgetting the Rules of the Game, by Erik Pevernagie. Licensed under Creative Commons.

A complex syndrome on the autism spectrum is receiving increasing attention from researchers and educators — those with the condition and their families hope that front-line clinicians won’t be far behind.

Increasing awareness

Getting help

Here’s the science bit

“She is starting to know how she should behave,
but that doesn’t mean she is capable.”

Looking to the future

If you’re interested in learning more about PDA, take a look at the full interviews, which were used to inform this post, and visit the websites of the National Autistic Society and the PDA Society.

Steve Silberman’s NeuroTribes (subtitled ‘the legacy of autism and how to think smarter about people who think differently’), features a foreword by the late Oliver Sachs and is currently on The New York Times’ bestseller list.

In this great video girls at Limpsfield Grange School describe what it means to them to be autistic.

Celebrity ghostwriter, chef, digital evangelist and Olympian... I am none of these, but I do like chocolate, Calvino and water.

Celebrity ghostwriter, chef, digital evangelist and Olympian... I am none of these, but I do like chocolate, Calvino and water.