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Middle-aged Chronically Ill Mom of Three

In what could be the worst time ever to establish care in the overburdened health care system!


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Playlist: “Like I’m Gonna Lose You”

Just a whisper of smoke…


Thoughts, Theories, and Random Nonsense I’m Shouting Into the Void.

The Milky Way edge as seen from Moonstone Beach in Cambria, CA.
The Milky Way edge as seen from Moonstone Beach in Cambria, CA.
Photo by James Lee

I was supposed to have my genetics appointment in September for a connective tissue evaluation. I missed my appointment because I had to get tested for COVID-19. Now I won’t be going until April 2021, as long as COVID doesn’t mess it up again.

A good portion of the family on my mother’s paternal side fit a hypermobile Ehlers-Danlos Syndrome (hEDS) diagnosis, some with Marfan’s features. My youngest fits the criteria, as does my oldest, while my middle daughter, has the signs of Classic Ehlers-Danlos Syndrome (cEDS.) …


A ripped paper heart hanging on a string against a black background.
A ripped paper heart hanging on a string against a black background.
Photo by Kelly Sikkema on Unsplash

Living With Chronic Illness in the Time of COVID-19

It’s been 42 days since I last left my house. It would have been longer, but I had to brave a walk-in clinic at the beginning of this pandemic because my 11-year-old daughter was suffering from extreme ear pain. Of our family of five, the only one who has left in this time span is my husband. He works in the transportation industry and has been considered an “essential employee.” Each of us is dealing with our new normal in our own way. Today, I’m dealing with it by sharing my perspective with you.

Physically, I’m slowly breaking down, with…


Hands of many races crossing each other, in a sort of huddle, with the words, “Welcome to Homeschooling, You Can Do This!”
Hands of many races crossing each other, in a sort of huddle, with the words, “Welcome to Homeschooling, You Can Do This!”

Learning Without Technology

You Can Do This!

Many parents and kids across the United States have recently found themselves thrust into the world of home education, without warning, without a plan, and without adequate support. As a homeschool veteran, who’s been going at this for the past 12 years, I want you to know that it’s going to be okay, and you can do this.

A big concern I’ve seen from parents is that they do not have adequate internet or technology available for their children to learn at home. …


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Hello

Did you miss me…forget about me?

I wouldn’t blame you if you forgot this little publication even existed.

I wasn’t in the right headspace to write. I’m back though, and ready to reconnect with my Medium community.

I’m not sure how often I’ll be writing yet, but I will be writing. I’ve also relaunched thatoddmom.com as a digital media service company, offering web design, social media help, and content. I’ve got my two oldest kids onboard, earning some valuable work experience too.


He should’ve just answered.

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SICK GIF

If you’ve been keeping up with the saga that is my declining health, as well as the health issues my kids have to deal with, I want to apologize for disappearing for a few weeks. I’m constantly fatigued and something is always hurting. The pain and new symptoms have picked up their pace, along with the visible appearance of it all.

It becomes hard to ignore how an illness is wearing you down when the receptionist at physical therapy, that you see twice a week, ask you one day if you are sick because you, “look rough today.”


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What my knees/legs currently look like after not hurting myself…

I didn’t, my body is hurting me!


Happy Solstice, Happy Hanukkah, Happy Kwanzaa, Feliz Navidad and…

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I hope you all enjoy the season!

I for one needed a little extra push to relax and remember that’s it about time spent with family, and the food…you know it’s always about the food.

So if you are going something too, and trying to give yourself permission to just be (instead of being perfect) go back and watch some classic, dysfunctional family Christmas movies and take comfort in the fact that you’re not hosting Uncle Eddie.

Unless you are…in that case, you can always double spike the nog!

Odd Mom Jess

Homeschooling 3 kids and navigating chronic illness while fending off asshole cats w/lots of coffee & sarcasm! More about Jess at thatoddmom.com

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