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Article 27

Collaborating on individual discovery

About the authors: Mad Price Ball and Bastian Greshake Tzovaras lead Open Humans as Executive Director and Director of Research, a…

Jan 24, 2020
Jan 24, 2020
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Article 27

How to Make 10 Million Discoveries

by Gary Wolf

Jan 8, 2020
7
How to Make 10 Million Discoveries
How to Make 10 Million Discoveries
Jan 8, 2020
7
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Steven Steinhubl: Where “All of Us” Meets All of Us

All of Us is based on the principle that all the data we get from participants we give back. This is not a research program, it’s a…

Apr 29, 2018
Steven Steinhubl: Where “All of Us” Meets All of Us
Steven Steinhubl: Where “All of Us” Meets All of Us
Apr 29, 2018
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Benjamin Smarr: Changing the Definition of Baseline

We’ve known that the idea of one static set point for physiological outputs is a 19th century idea since the 19th century.

Apr 29, 2018
Benjamin Smarr: Changing the Definition of Baseline
Benjamin Smarr: Changing the Definition of Baseline
Apr 29, 2018
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Sunita Vohra: What N-of-1 Can Do

Instead of ‘N-of-1 trials are relevant when Randomized Control Trials are not available/applicable’, how about Randomized Control Trials…

Apr 29, 2018
Sunita Vohra: What N-of-1 Can Do
Sunita Vohra: What N-of-1 Can Do
Apr 29, 2018
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Camille Nebeker: Informed Consent, Self-Consent

Part of the results of the Blood Testers experiment will be a checklist to help people doing self-study or group self-study think through…

Apr 28, 2018
Camille Nebeker: Informed Consent, Self-Consent
Camille Nebeker: Informed Consent, Self-Consent
Apr 28, 2018
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Boomer Anderson, Marcel van der Kuil: Participant Perspectives on Regulation of Research

I was an avid self-experimenter in an ad-hoc way. But two years ago I was diagnosed with heart disease and I thought ‘maybe I should learn…

Apr 28, 2018
Boomer Anderson, Marcel van der Kuil: Participant Perspectives on Regulation of Research
Boomer Anderson, Marcel van der Kuil: Participant Perspectives on Regulation of Research
Apr 28, 2018
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Dana Lewis: Social Infrastructure for Participant-Led Research

[There’s a] perception that community, citizen or QS research is not as ‘good’ as other research. Why? Because I don’t have a PhD; as if a…

Apr 28, 2018
Dana Lewis: Social Infrastructure for Participant-Led Research
Dana Lewis: Social Infrastructure for Participant-Led Research
Apr 28, 2018
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Jeffrey Olgin: Data Aggregation for N-of-1 to “N-of-Many-Ones”

“Within a few days we were able to identify the 20 most common triggers of atrial fibrillation. People with those triggers will be micro…

Apr 28, 2018
Jeffrey Olgin: Data Aggregation for N-of-1 to “N-of-Many-Ones”
Jeffrey Olgin: Data Aggregation for N-of-1 to “N-of-Many-Ones”
Apr 28, 2018
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Katherine Kim: What Counts as Clinical Data?

“For the top 10% of people likely to be readmitted to the hospital, the best predictor of actual readmission was self-reported data.”…

Apr 28, 2018
Katherine Kim: What Counts as Clinical Data?
Katherine Kim: What Counts as Clinical Data?
Apr 28, 2018
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