Hi Zach, thanks for sharing this. What a frightening experience for you and your family, and what a constantly difficult life you must lead.
It does sound incredible that there has been a ten-fold increase in the price of the medication, although obviously we don’t have access to all the company’s financial information.
Maybe it would be an idea to get this onto an international campaign forum like the Avaaz organisation?
Maybe the proposed health reforms in the US might help — eventually.
Good luck with publicising it.