I call Pseudocrap on new ME/CFS research from Bristol University that uses The Lightning Process!
SMILE is a randomised controlled trial for children and young people with CFS/ME, set up by Bristol University (England) . The trial recruited children and young people (aged 12 to 18 years old) from a specialist paediatric CFS/ME service in the south west of England. Participants were randomised to receive either specialist medical care (SMC) or SMC plus the Lightning Process (LP).
But, I call BS ( or PseudoCrap ) on it, since the research report by Bristol University, omitted (left out) that The Lightning Process (LP) is conroversonal Pseudoscience, and is harmful, both in health and monetary terms.
Luckily quite a few Scientists and Medics already agree with me. Here’s a few links:
James C Coyne (Clinical Psychologist) : https://twitter.com/CoyneoftheRealm/status/809533710936772609
And James C Coyne’s blog on the subject : https://www.coyneoftherealm.com/blogs/mind-the-brain/science-media-centre-concedes-negative-reaction-from-scientific-community-to-coverage-of-esther-crawley-s-smile-trial
An event on “How to deal with Anti-Science” : https://twitter.com/BritRenalSoc/status/809394794141253632
The Skeptics Dictionary : http://skepdic.com/lightningprocess.html
The Canary ( Bristol based online newspaper , did some lovely research on the PACE trial, in which this SMILE research is based upon ) : https://www.thecanary.co/discovery/science/2016/10/02/results-really-didnt-want-see-key-mecfs-trial-data-released/
Worth reading this wiki article, and noting the ‘Controversies and Criticisms’ on the Dr/Prof who has done the research into ME/CFS : http://me-pedia.org/wiki/Esther_Crawley
An now Links on the research:
link to the original Bristol University report called “SMILE”→
Centre for Child and Adolescent Health
What is SMILE? SMILE is a randomised controlled trial for children and young people with CFS/ME. The trial recruited…
Bristol Health Partners report, which is biased (as one of it’s partners is Bristol University) says →
Study investigating effectiveness of The Lightning Process® programme to treat children with mild…
The first trial of The Lightning Process® has published its results. It looked at the effectiveness of LP in addition…
The Guardian newspaper picked up on a story around this research in August 2011, on how the “scientists” were threatened, which says →
None of the scientists contacted by the Observer believed chronic fatigue syndrome was purely psychological. All thought external causes were involved. “There is an element that is heritable,” said Dr Esther Crawley, a consultant paediatrician at Bristol University. “We also know that in children it is often triggered by a virus infection, while in adults it is associated with social deprivation. Stress and adversity is involved. To call this yuppie flu — as people have done — is a complete misnomer.”
Crawley has spent years trying to unravel the causes, but her refusal to accept that the condition is a result only of organic external factors has resulted in her being deluged with hate mail from extremists. “You evil bastards … time is running out for you so you have [sic] better start denouncing your flawed inhumane therapy and pray to God for forgiveness,” said one.
“To those who are responsible for preventing us sick ME sufferers from getting the help we need … you will all pay,” stated another. “It is depressing to receive emails like that, but I make sure that it does not get me down,” said Crawley. “I do check packages that are sent to my office, however.”
Chronic fatigue syndrome researchers face death threats from militants
The full extent of the campaign of intimidation, attacks and death threats made against scientists by activists who…
To wrap up. The Lightning Process is a “commercial” product that has no medical claims. The background to it is weak, as a cup of Tea with loads of Milk. (side note: there’s no such thing as Organic Milk, as we don’t have Organic Cows. There are breeds of Cows, and heard names, but no Organic cows. Also Milk is still processed). The Lightning Process (LP) is made up Pseudoscience with it’s aims to fool, to be a quick fix, and to be a money racket.