Aug 4, 2020Still’s Disease Complications: Part I Primary Immune Deficiency DisordersWhere Still’s Disease and Infections Meet As the first part of our series on Still’s disease complications, we are examining the innate immune dysregulation of Still’s and related immune system disorders and deficiencies. We wanted to start our discussion of Still’s disease complications with the ramifications of immune disorders as they are the broadest category, and…5 min read5 min read
Jun 19, 2020Still’s Disease Complications: IntroductionImagine for a moment, you are in a casino and before you are two giant dice. The first has on each of its sides the various organ systems while the second is covered in the endless inflammation pathways of the immune system. In this casino, these are the only dice…3 min read3 min read
Jun 10, 2020Complex Patient Presents With….Let’s recap Still’s is a rare systemic autoinflammatory disease with complex and aggressive complications. Still’s and its respective complications can be variable and capricious in presentation making a definitive diagnosis difficult. …6 min read6 min read
May 28, 2020How are YOU doing?by Shalla Newton, MSN, RN, NE-BC and David Maher Your providers are human: Burnout is REAL! Still’s disease is hard for us as patients, but also for your providers treating you. We are patients with complex medical histories on any normal day requiring resource-intensive alliances with our care teams. However, we are not in normal times during…7 min read7 min read
May 20, 2020Immune-Overdrive: Cytokine Storms & COVID-19by: Shalla Newton MSN, RN, NE-BC and David Maher We have been absolutely overwhelmed by the outpouring of support and responses from patients, family members/care-givers and rheumatology experts! Our target audience has responded saying they feel heard and better equipped with the science behind the complexity of Still’s disease. We…12 min read12 min read
May 13, 2020Defining Adult Onset Still’s Disease (AOSD)by: Shalla Newton MSN, RN, NE-BC and David Maher As AOSD patients ourselves we deeply feel a need for further information specifically on our diagnosis. We advocate for the two continuums to be denoted under the larger umbrella term of Still’s disease, but literature, FDA treatments and support groups/advocacy organizations…11 min read11 min read
May 5, 2020Introducing Still’s DiseaseNot another patient diary on a disease…nope, we are not here for that! Hello and welcome to Still’s disease, the 411! Shalla and David, our two authors, are excited to share with you a scientific perspective on Still’s disease. As Still’s disease patients ourselves, we have been frustrated by the…9 min read9 min read
