Hi Abby, thanks for sharing your story. You’ve given voice to many of my feelings. I have struggled with chronic pain and fatigue condition for… (had to count) 11 years now. I was on disability twice and then lost my job because the exhaustion and constant discomfort prevented me from performing adequately at work.I went from doctor to doctor for the first six years, experiencing many of the same frustrations that you did. The worst part of it for me, I think, was the years without a diagnosis. I began doubting my mental fortitude and even my sanity. I still don’t have a firm diagnosis; I’ve been told at various times that it’s undifferentiated connective tissue disease, lupus, chronic fatigue syndrome, and fibromyalgia. We’re going with fibro at this point because the drugs for lupus didn’t help at all, except for the glucosteroids. I hate the term fibromyalgia, for a variety of reasons that I will not bore you with.
Anyway, enough about me. My real point in writing is to say “I feel you, sister, and you are not alone. And I am truly sorry that you suffer so much with your disease, and that you have to worry about heart disease on top of your daily struggles.”
Peace to you, Abby.