Diabetic Cyborg Life: Waning Optimism? Nope!
“The noted pacifist scholar Johan Galtung tells young people, ‘We must be realist in our brains while keeping the flame of idealism burning in our hearts.’ Both of these — to see the world as it is and how it could be — are essential to reform. A firm hold on reality should not entail being swamped by or resting easy in the status quo. To pioneer uncharted ways requires that people today keep the lamp of optimism lit.”
The other day I was asked if I felt the optimism I feel weakening. Yet, I am finding that my optimism is stronger than ever is a welcome change to the continual effort to make the best of my life. These diseases that affect my life are more a reason I strive to make my life and those of family and friends that much better.
Being the reason someone smiles when they think of me is great thing and one of the clearest motives that I find as my power to keep living. A few of the online friends tell that I am an inspiration and gush with love towards me. I cannot help but reply that they are my reasons for my perceived will to live.
This feeling of being happy just to be alive after my multiple sclerosis, or MS, diagnosis in 2017. The though my life will be limited and affected by the disease in ways that might not be “normal” since results can vary is an idea that can over whelm me. Everyone’s body reacts differently to the illness actually makes me want to see what happens next in my life.
That natural curiosity made me want to be a historian and only gets stronger with every complication of my MS. Overcoming the barrier the disease makes for me is like a challenge that I must find a way to deal with. My life and time in college almost make me feel that I was destiny to get MS.
Figuring out my way through college and life is one big adventure and I cannot wait to see how it all turns out!
A course on how to encourage people was a prompted “course” I teach by a friend on FB. Honestly, I see what I do with my optimism and encouraging of people as basic politeness and civility. My mother and her mother taught the ethics and values of humanity that made my childhood to me.
Crossing “Granny” as I knew my grandmother (Mother’s side) at the time was simply not done. She expected me to be as civil and polite to strangers as family. I guess the shock to my life that my MS provided made me revert to my basic ethic and standards of how to treat others.
This kind treatment of others does mix well with my optimism and good will toward others, so I guess that only makes sense. I will admit my own treatment of others is violating those rules for a while and I do still slip, but I recover and apologize when it happens. My MS does come with cognitive issues and that might pay a hand in those slips.
The decision to go it without a continuous glucose monitor, or CGM, for the most part was a good decision. Only once or twice has my blood glucose, or BG, registered at below seventy in recent days. I just hope that my good fortune with no having low BGs continues and I don’t wind up call the EMS with hypoglycemia anytime soon.
The drama and headache from having to calibrate or check my BG was actually close to what the number the CGM is showing. Honestly, what it the advantage of a CGM if I am consistently checking my BG with a finger stick test? That was why I decided to not worry with a CGM when my Dexcom G5 supplies were not paid for.
The reaction that the Dexcom people had when I had a unit die and I said that I might not worry about getting it replaced was funny to me. They acted like I was alien and what was I going to do with out a CGM! Well, I can be vigilant and check my BG if I think it is low. I guess the fact I was willing to go with no CGM was like I was an alien from their experience with customers calling them for assistance.
In other recent events, the first night on Aubagio went well with no complications or side effects overnight. The thinking of my neurologist might be that both this and the Copaxone combined are the same as the Ocrevus that I was supposed be using by now. Those infusions instead of these two medications when I was going to change to a specialist, but I guess that changed.
The failure of the Medicaid system of Texas to cover one MS specialist that I can go see seems to have change how my treatment plan. Mentoring my blood pressure, or BP, is recommended by all the literature the Aubagio comes with. That was showing that my BP is regularly running in the hypertension level 1 range of above one-thirty over ninety and that is staying the same as of now.
This new higher BP hypertension is making me want to take more of the low-does Lisinopril my PCP gave me for my kidneys. I stopped taking it a while ago sense it made my BP too low and hypotension was an issue. Now taking it again I am hoping that it can be in the “normal” range again.
One doctor or the other is bound to recommend that I get a high dosage of that medication get my BPs back to where they ought to be. I just have to wait until it is an issue that one recognizes and wishes to change and make right again. The pending appointment with my endocrinologist this month might just provide exactly that.
Like the Blog? Watch the Vlog! Coming Wednesday, November 13!