Unstoppable: How Glenda Thomas Made Incredible Accomplishments Despite Suffering From MuSK Myasthenia Gravis

What most people think of as simple everyday tasks, like cooking, eating, holding your head up, or moving your fingers across the keyboard, can be challenging for people living with MuSK Myasthenia Gravis.

As a part of our “Unstoppable” series, I had the pleasure of interviewing Glenda Thomas.

Glenda Thomas was diagnosed with MuSK myasthenia gravis (MG), one of the rarest and most severe subtypes of the disease, affecting approximately 5% of all MG patients and 1 in 100,000 people in the U.S. Since Glenda’s diagnosis, she has been an active advocate for the MG community. Currently, she is an active volunteer for the Myasthenia Gravis Foundation of America where she works as a group leader, keynote speaker, fundraiser, conference planner and patient advocate. In addition, this year she was appointed to the newly established Rare Disease Advisory Council of Massachusetts. In this role, she provides guidance to local, state, and federal-level legislators and policymakers to ensure patient perspectives and needs are central to policy changes that impact and affect solutions for rare diseases.