How I Learned to Live through Limbo

Debi Lewis
Oct 5, 2020 · 5 min read
a photo of a woman’s legs in rolled-up jeans and red converse low-top sneakers, balancing on a cement wall
Photo by Fallon Michael on Unsplash

When my daughter was five, I thought it was possible she’d have to give up food.

It sounds ridiculous and far-fetched — like the world we’re all living in right now — but it wasn’t. She’d been diagnosed with a poorly-understood disease of the esophagus whose symptoms were set off by food proteins. The reactions to foods in this disease — eosinophilic esophagitis — are delayed, capricious, and don’t…