About this Blog / Disclaimers

I am not a doctor and cannot provide medical advice. Please consult a medical professional before pursuing any of the suggestions or hypotheses discussed on this blog.

The purpose of this blog is to share observations and hypotheses that may help stimulate further research into my daughter’s illness. She has been diagnosed with Ehlers-Danlos Syndrome (EDS), hypermobility type; Mast Cell Activation Syndrome; Chronic Fatigue Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); and several neurological manifestations of EDS, including Craniocervical Instability, Chiari Malformation, and Tethered Cord.

Given the wide heterogeneity of patient conditions and responses reported in literature, it is possible that my daughter’s responses are not typical of the broader population of individuals with these conditions. Nonetheless, I hope the observations and hypotheses prove useful.

I would welcome critiques or corrections as well as follow-up discussion regarding any of the suggestions, assertions, and hypotheses discussed in these posts.

I will be using the pseudonym John Doe for posts that include personal details about my daughter’s condition. My real name is Jeffrey Lubell.