Elliot’s story (in a nutshell)
Elliot is living with a DIPG, a rare and deadly form of brain cancer. Only about 15 Australian children are affected by it every year, but the outcome is always the same. We have been waiting for some sort of treatment to become available for Elliot, here in Australia or abroad, and are still waiting. He is nearing the end of his short life (he turned five on June 17), and we as his parents, are unable to do anything but make it as beautiful and loving a time for him as possible.
It’s been an absolutely heartbreaking 18 months, particularly the last four, and we’re grateful for all the support we’ve been getting. We urge you to support brain cancer research programs (such as the Isabella & Marcus Foundation, Cure Brain Cancer Foundation or Charlie Teo Foundation), as brain cancer kills more children in Australia than any other disease, yet the survival rate has increased just 1% over the past 30 years. In the case of DIPG, it has remained at 0%. Let’s change that.
Today, it was announced that Dr Maria Tsoli, one of the principal researchers of DIPG in Australia, has just received a research grant for $246,604. While the fruit of this research will come too late for Elliot, it will hopefully lead to breakthroughs which will spare future families the pain we are enduring right now and for the rest of our lives.
Read the next part of Elliot’s story here.
