The Remarkable Life and Death of Roy L. “Rocky” Dennis

First to Know
FirstToKnow
Published in
3 min readMay 30, 2019

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Photo: Firsttoknow.com

He wasn’t supposed to live past the age of seven.

On Dec. 4, 1961, Roy L. “Rocky” Dennis was born in Glendora, California, and was initially thought to be a perfectly healthy baby. It wasn’t until an X-ray technician noticed a slight cranial anomaly when he was 18-months-old that doctors began questioning what was wrong with the adorable little boy. What started out as just a routine tonsillectomy turned into a decade-long battle for survival.

“The bridge of his nose hadn’t formed,” his mother, Florence Tullis, told the Chicago Tribune. “That happens in a lot of babies, so no one had worried much. But then his head started to grow. I went into shock.”

Rocky suffered from a rare and fatal congenital disease called craniodiaphyseal dysplasia, which caused his face and head to swell to a bizarre size and shape. Craniodiaphyseal dysplasia triggered severe headaches, paralysis, and ruptured blood vessels.

His condition was so unusual that only a handful of other cases have ever been reported. Doctors believed he would be mentally retarded, blind and dead before turning seven-years-old. But his mother, who was a former go-go dancer with a fondness for bikers and drugs, didn’t believe a word of it.

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