“This whole area of research is hampered by people working in silos.”

Neuropsychologist Prof Greg Savage explains the thinking behind the Frankl dementia app

Jon Brock
Jon Brock
Mar 30 · 2 min read

In our latest video, neuropsychologist Prof Greg Savage explains the thinking behind Frankl’s dementia screening app and the need for better ways of sharing clinical research data.

Transcript:

I’m Greg Savage. I’m a research and clinical neuropsychologist. A lot of my clinical work relates to the assessment of whether someone is at risk of having a neurodegenerative disease like Alzheimer’s disease. We do a lot of testing. It takes a long time to get an answer to that kind of question. And often the answer is not definitive enough.

What we need is a test that focuses on damage to areas of the brain that are involved in diseases like Alzheimer’s disease. That’s the goal. To have a test that is not too confronting. Simple, short but can distinguish between the kind of memory problem that is something to be seriously worried about versus one which might not be so worrisome and could be treated perhaps.

This whole area of research is hampered by people working in silos. There are lots of memory clinics around even across Sydney but they don’t tend to talk to each other. Apps which work on an open science basis and data sharing provide a way out of that tight loop that people get into. We’d have not only distributed and large datasets but we’d have them over periods of time which would be ideal for tracking disease processes longitudinally.

Of course there’s the perennial problem of data sharing when you have medical records. A technology that has multiple levels of security with distribution of essential data so that no node in this network actually gets to see the whole story provides that level of security that we would want, that we’d insist upon.

At Frankl, our mission is to make open science easy and rewarding for scientists. If you’d like to know more, you can read our whitepaper, check out our website, follow us on Facebook and Twitter, or join our Telegram channel.

Frankl Open Science

Frankl - an open science platform on the ethereum blockchain

Jon Brock

Written by

Jon Brock

Cognitive scientist, science writer, and co-founder of Frankl Open Science. Thoughts my own, subject to change.

Frankl Open Science

Frankl - an open science platform on the ethereum blockchain

Welcome to a place where words matter. On Medium, smart voices and original ideas take center stage - with no ads in sight. Watch
Follow all the topics you care about, and we’ll deliver the best stories for you to your homepage and inbox. Explore
Get unlimited access to the best stories on Medium — and support writers while you’re at it. Just $5/month. Upgrade