Rare Disease

I Didn’t Achieve My Advocacy Goal

Confessions of a rare disease advocate

Photo by Mehrpouya H on Unsplash

PKU Awareness Day falls at the beginning of December every year. If you have no idea what that means, this is exactly the point of the day. PKU is a rare metabolic disorder in which the body cannot break down phenylalanine, an amino acid in protein. It is a serious condition. If the disease is…