Type 1 Diabetes in Pakistan: A Battle Against Time and Misconceptions

In Pakistan, type 1 diabetes is becoming an increasingly critical health issue, especially among children and young adults. Despite its severity, awareness and management of type 1 diabetes remain inadequate, leading to dire consequences for many who live with the condition. The country is ranked third globally in terms of diabetes prevalence, with an estimated 19.4 million adults affected by the disease. However, type 1 diabetes, which primarily affects children and young adults, is often overshadowed by the more common type 2 diabetes.

This is not just a healthcare issue; it is a matter of life and death for many children across the country.

Understanding Type 1 Diabetes

Type 1 diabetes is an autoimmune condition where the body’s immune system attacks insulin-producing cells in the pancreas. Unlike type 2 diabetes, which is often linked to lifestyle factors and is more common in adults, type 1 diabetes is primarily diagnosed in children and young adults. It requires lifelong insulin therapy, as the body cannot produce enough insulin on its own. This makes access to insulin, regular blood sugar monitoring, and proper medical care essential for survival. Unfortunately, in Pakistan, these necessities are not always readily available, particularly in rural areas.

Meethi Zindagi: The Birth of a Mission

Dr. Sana Ajmal, the founder of Meethi Zindagi, recognized this critical gap in healthcare and support for those with type 1 diabetes in Pakistan. Her personal experience with the condition motivated her to establish an organization dedicated to improving the lives of those affected by type 1 diabetes. Meethi Zindagi focuses on providing insulin, education, and emotional support to children and their families. The organization aims to bridge the gap in care and ensure that children with type 1 diabetes can lead healthy, productive lives.

The Five Pillar Model

To address the numerous challenges faced by children with type 1 diabetes in Pakistan, Meethi Zindagi operates on a comprehensive five-pillar model:

1. Medical Supplies: Ensuring the provision of essential medicines and equipment like insulin and test strips, which are crucial for daily diabetes management.
2. Medical Consultation: Facilitating access to regular medical advice and consultations, which are vital for monitoring the condition and making necessary adjustments to treatment.
3. Self-Management Education: Educating patients on how to manage their diabetes day-to-day, including how to monitor blood sugar levels, adjust insulin doses, and manage diet and exercise.
4. Emotional and Peer Support: Offering emotional and peer support to help patients cope with the mental stress and societal stigma often associated with type 1 diabetes.
5. Awareness and Advocacy: Educating the broader community about type 1 diabetes and advocating for better policies and support systems to ensure that people with diabetes can live full, healthy lives.

Challenges Faced

The challenges faced by Meethi Zindagi and the broader diabetes community in Pakistan are multifaceted. One of the biggest issues is the uncertainty surrounding insulin availability. In recent years, Pakistan has faced severe shortages of insulin due to supply chain disruptions and policy changes. This has put the lives of thousands of children at risk. Furthermore, there is a significant lack of awareness about type 1 diabetes, both among the general public and within the medical community. Many healthcare providers are not adequately trained to diagnose or manage the condition, leading to delayed diagnoses and inadequate care​.

Impact Stories

Meethi Zindagi’s impact is best understood through the stories of the children they support. One young boy dropped out of school to continue his education, thanks to the support he received. Today, he is on the verge of completing his degree in IT. Another child, despite severe health challenges, managed to secure admission to a top university. These stories are a testament to how structured support can transform lives, allowing children with type 1 diabetes to not only survive but thrive.

The Cost and How to Help

Supporting a child with type 1 diabetes through Meethi Zindagi costs approximately Rs. 114,000 annually. This cost covers insulin, test strips, medical consultations, and other necessary support. Dr. Sana emphasizes that there are many ways to contribute, not just through financial donations. Volunteers can help by spreading awareness, conducting internal audits, or sharing the stories of the children supported by the organization. Every effort, big or small, contributes to creating a better future for these children.

A Call to Action

Given the challenges, there is an urgent need for a concerted effort to improve the situation for people with type 1 diabetes in Pakistan. This includes increasing public awareness, improving healthcare provider training, and ensuring a stable supply of insulin and other essential medical supplies. Organizations like Meethi Zindagi are doing critical work, but they cannot do it alone. Greater involvement from the government, international organizations, and the private sector is essential to create sustainable solutions and improve the lives of those living with type 1 diabetes in Pakistan.