Adorable Arda

My son Arda was born as healthy and very sweet baby boy on August 6, 2011.

He developed just like his older brother until the age four.

He loved to go to kindergarten, play with children, swim and play football with his brother.

On June 6 2015 he got very high fever with seizure.We went to the hospital . After this he started to have a problem with his balance. He would fall down every-time. We went to a lot of doctors. Finally, September 2015 Arda had his MRI and the doctor said to us: “I think it’s Vanishing White Matter Disease (VWM) “. We were shocked . I didn't believe it.

To be sure we sent his samples to be genetically tested for vanishing white matter (VWM). Few months later we got the dreaded news that our son would die.

It’s heartbreaking there is no cure for this monster disease . It’s heartbreaking to see my son deteriorate every day. All we can do is live in “hope” and believe that one day the cure will be found.

Currently, Arda lost his ability to walk and stand.

Please be our hero and help us fund the research! Small amounts of money can have outsized impact in the world of‪#‎VanishingWhiteMatterDisease‬ (VWM). Because ‪#‎leukodystrophies‬ are so rare, therefore research relies heavily on private donations. Even if it’s a small amount, please consider donating.

Written by Arda’s mom.